Holistic Recovery from Schizophrenia

“Jennifer”

I have been aware of “Jennifer” for almost fifteen years. I can’t say I really know her, but at one point I made a concerted effort over the course of a year to visit her in the psychiatric hospital. She’s pretty, she has a daughter who lives with her an ex-husband, and for the past two years at least, she’s become progressively very, very, delusional. From what I’ve seen, and from what others tell me, she wanders the streets every day, alone.

She has nobody in a position of real caring to help her. I mean family. Her mother lives far away. I tried contacting the mother at one point to find out how I and others could be of more help, and was rather rudely brushed aside. If the mother had been smarter, she could have swallowed her understandable anger enough to establish contact with people who were willing to visit her daughter and would gladly welcome her suggestions as to how best to help her daughter. It’s blindingly obvious that involving non-relatives is a poor substitute for a having a mother in close proximity, but it’s certainly preferable to having no one.

I tried calling Jennifer’s state appointed guardian today. The office phone rang and rang and rang, then a message clicked in that nobody was around to take the call (despite the fact that my call was during office hours). The message instructed me to call back later. So, I called back later, and got a woman shouting to me over the loud music in the background that the guardian was out, call back later. I called the office for the third time that hour, was told, after checking with the guardian, that he was busy, and I should e-mail him. Long story short, I found out she’s back in the hospital.

This is a contained opportunity to do more.

Resume the resume

I’ve been helping Chris spruce up his résumé this past week. It’s not targeted for employment, it’s more of a snapshot of what he’s been doing in the past few years, which is lots, judging from the content. There’s all of his chorus and solo work as a member of a musical theatre group and the church choir, as well as community service work, along with his part time course work.

What is not evident from looking at this very impressive list of accomplishments is the behind the scenes frustration trying to make sure he got to the places he needed to be on time. There were so many no shows and late shows on his part. Chris often didn’t realize that a rehearsal had been cancelled or changed to a different location. He got on the bus, went all the way there, only to discover a darkened hall. Or, he was so slow getting ready to go out that I had to drive him to make sure that he made a timely entrance. He was usually late for choir practice. I can’t tell you the number of times that he was late to a class, so he didn’t bother to go. The number of missed or partial voice lessons: “I don’t want to receive a message Ever Again! on the answering machine from your teacher wondering where you are.” (And then it happens . . . Again.)

In reviewing the résumé, Chris told me that he recently went back and completed the two week certificate course that he had walked out on several years ago. (Too many people in the class back then, his head wasn’t in the right place, etc.) Tying up the loose ends by resuming what he started seems to me like very good news, indeed.

interesting that the English word “resume” is résumé in French.

Jeremy Narby

Anthropologist Jeremy Narby is from Montreal, lives in Switzerland, and is the author, amongst other books, of The Cosmic Serpent: DNA and the Origins of Knowledge.

“Investigating the connections between shamanism and molecular biology, Narby hypothesizes that shamans may be able to access information at the molecular level through the ingestion of entheogens, specifically ayahuasca. Biophysicist Jacques Dubochet criticized Narby for not testing his hypothesis. Narby and three molecular biologists revisited the Peruvian Amazon to try to test the hypothesis, and their work is featured in the documentary film, Night of the Liana.” (Wikipedia)

From the Bioneers website Bioneers is an innovative nonprofit educational organization that highlights breakthrough solutions for restoring people and planet. Founded in 1990 in Santa Fe, New Mexico by social entrepreneurs Kenny Ausubel and Nina Simons, Bioneers advances the great transformation underway in human civilization by serving as a seed head for game-changing social and scientific vision, knowledge and practices that honor the genius of nature and human ingenuity.

How schizophrenia begins

I’ve heard lots of stories. Sometimes what is later diagnosed as schizophrenia presents itself as a dramatic physical complaint that is dismissed by the family doctor or in the emergency room. Severe heart palpitations, perhaps, or the feeling that your legs won’t support you as you suddenly collapse on the athletic field.

For Chris, the dramatic scene was on a plane that was about to land. I was seated next to him when I was suddenly jolted out of my reading by a scream. I turned to see his hand shooting to his temple. The plane landed and the pain disappeared as suddenly as it had started.

“Nothing to worry about,” the doctor assured him. A follow-up visit revealed no new information.

Over the next few months Chris kept tapping a certain spot on his temple, saying it felt like an indentation. Chris went back to the doctor and received the same answer. There was nothing to worry about.

Where you can find The Scenic Route

I’m pleased to announce that The Scenic Route: A Way through Madness can be ordered through Amazon,* Barnes & Noble, Chapters/Indigo, local booksellers, and libraries. Please note that, as this is a print-on-demand book, it may be subject to shipment delays.

* Currently, customers for this book report experiencing delivery problems with Amazon (The book is continuously “out of stock” or “temporarily unavailable.”) There are a couple of choices: 1) Order directly from Amazon but be prepared to WAIT, a long time. 2) Do not order directly from Amazon. Order instead from the “new and used” books that are sold through third party vendors.

Amazon

United States: https://tinyurl.com/yb5gvos4

Canada: https://tinyurl.com/y9xddkck

Europe (UK):  https://tinyurl.com/yb6t4zwj

India:  https://tinyurl.com/y77x5k2e

Australia: https://tinyurl.com/ybl7kg2a

Barnes & Noble

https://tinyurl.com/ybmhdtfc

Chapters/Indigo.ca 

https://tinyurl.com/yb7woo7e

Congratulations go out to Liz, Kristin, and Luc, who will receive a free copy of my book.

 

 

Free copies of my book

CONTEST NOW CLOSED. THE WINNERS ARE LIZ, LUC, AND KRISTIN

I’m giving away free copies of The Scenic Route to the first three people who send a message to my e-mail address recoverymodel@gmail.com that includes their name, mailing address, and telephone number (for Amazon delivery). You have to be registered on this blog in order to be eligible, so please use the sign up section on the right if you aren’t already receiving my updates.

The Scenic Route can be pre-ordered on Amazon. Books will be shipped in approximately ten days.

See first half of Chapter 1 below.  I hope you’re hooked!

 

The Scenic Route

Copyright © 2018 Rossa Forbes

Chapter 1

Cosmic Concerns

IN SEPTEMBER 2002, on the morning Chris was due to leave home to begin life as an undergraduate at Trinity College, University of Toronto, he still had not packed his bags. Clothes were strewn all over his bedroom; his suitcases were empty. He sat on the edge of his bed, dazed.

     “Get packing,” I yelled.  “The taxi is arriving in half an hour!”

     Chris remained motionless, so I threw all of his clothes and necessities into two suitcases and slammed them shut, wondering how he was going to survive on his own if he couldn’t even pack a suitcase.

     Half an hour later, I watched from the window as Chris and his father loaded the luggage into the taxi and headed for the airport to catch their flight. Tears rolled down my cheeks. Something was terribly wrong. My firstborn had gone from being a dedicated, organized, and intellectually ambitious student to a confused young man who needed constant prodding to complete his work. Continue reading “Free copies of my book”

How to cure schizophrenia

Pay special attention to today’s important post. Laurna Tallman has given me permission to reprint her original blog post (see below) in its entirety.

I discovered Laurna Tallman’s astonishing research during this past summer when I was lining up further Tomatis therapy for Chris and beginning therapy for me. I read her blog post and was impressed, but didn’t return to it until Chris and I had finished forty hours of standard Tomatis therapy spread over two sessions, one in September and the second one in November. The Tomatis director was very encouraging about Chris’s growing listening comprehension. On my part, I felt after only a few hours of the therapy that my vision has somehow expanded to take in things in my environment that I hadn’t seen before. For example, how come I hadn’t noticed how wide these streets are? Along with this came a burst in me of newfound enthusiasm for living. But, I was none-the-wiser about why this therapy might be well suited for schizophrenia, let alone “cure” schizophrenia. Doctor Alfred Tomatis didn’t have much to say about schizophrenia in his published work. You have to really dig deep to find out about alternative healing for schizophrenia buthey, that’s why I write my blog.

I re-read Laurna’s post a few weeks ago, did a bit of internet snooping around on her other postings, and my first reaction was: How can she be so absolutely convinced that just about all mental illness begins in the ear? (She tends to use italics a lot for emphasis.) My second reaction was: If someone is that convinced then I’d better listen. I’m so glad I did. Her research has put forth a coherent explanation of many of Chris’s puzzling symptoms, allowing me a eureka moment. I suddenly had a plausible, elegantly tied-together explanation for what was going on with him. Finally, I had found someone who’s certain about the causes of a condition that has everyone else throwing up their hands and saying “we don’t really know”.

I’m a believer in Laurna Tallman’s work and increasingly confident that Chris will shed all traces of the symptoms of schizophrenia that have plagued him for years. Using her academic background and herself and her family as the subject of her research, through her “focused listening” technique she has gone beyond the work of Tomatis and Bérard to help people with a diagnosis of schizophrenia become more left-brain dominant (i.e., rational, logical, energized, integrated, and organized). It’s all about strengthening a tiny muscle of the middle ear.

Laura Tallman’s post from the schizophrenia tab of MentalHealththroughMusic.ca

Check out more information at the CBT tab of MentalHealththroughMusic.ca

Schizophrenia

The idea that medical science really did not know any more than I did about what caused schizophrenia was a long, long dawn.

Daniel had been in a provincial psychiatric hospital and then had been moved back to the admitting general hospital. At last, the elderly psychiatrist I had been trying for weeks to contact for information about Daniel’s mental condition telephoned me. “I am Dr. R. You can pick Daniel up today,” she said.

“What is Daniel’s diagnosis?” I asked.

“Acute schizophrenia,” she answered.

“And what is his prognosis?” I ventured.

“Once a schizophrenic, always a schizophrenic,” she replied and hung up the phone.

It occurred to me that no doctor in her right mind would break that kind of news to a parent that way. But I already had reasons for distrusting the kind of “help” Daniel was getting from his psychiatrists.

I made the hour’s drive to the hospital, picked up our oddly subdued son, and asked him as we started home if he would be able to wait in the car for a few minutes while I stopped at the library. In terror as to what sort of things might go wrong if I left him unattended, I ran into the building, found the small section on health, and gathered psychiatric texts, stories by or about schizophrenics, and books about dyslexia into my carryall. My formal education on the state of the art of psychiatric knowledge about schizophrenia had begun.

The texts I read implied that differing forms of mental illness were like different kinds of skin diseases: different, but all happening in the same place — the brain. The more I learned about neurologists’ and psychiatrists’ probing of the brain for the cause of schizophrenia, the more I fell into the trap of thinking the brain became sick in a dozen different ways to produce various mental illnesses. Occasionally, I would encounter a doctor who mentioned similarities between one mental illness or another. In fact, manic depression and schizophrenia have many similar symptoms. Autism used to be called “infantile schizophrenia.” Asperger’s is like schizophrenia in some ways, too. But no one had a theory of how or why these conditions were related.

During several of Daniel’s episodes of schizophrenia I had noticed his ability to focus on conversation wavered and returned. I measured that fluctuation. The intervals were 2 minutes of clarity followed by 2 minutes of confusion to make a 4-minute cycle. The cycle persisted all day, every day. I measured that cycle twice again, years apart, during separate schizophrenic episodes and the results were identical. I knew that some physiological process was driving the changes in his brain. But what?  Between his severe episodes we struggled to help him to defeat his addictions. Sometimes he seemed to improve a little, then, he became acutely schizophrenic time and time again. One victory was titrating his medication to the lowest possible dosage for tolerable behaviour: 0.0625 mg. of risperidone, a minuscule amount. Continue reading “How to cure schizophrenia”

The Quiet Room

Now that I’ve finished writing my own book, I’ve got time to catch up on what I haven’t been reading. The Quiet Room: A Journey Out of the Torment of Madness, by Lori Schiller and Amanda Bennett, wasn’t on my “must read” list because I had heard that Schiller credits her recovery largely to clozapine, and that didn’t set well with my understanding of what a “good” recovery should be attributed to. (I’ve become less hardline on recoveries since then.) So, looking for a good read, I purchased the book on Kindle.

As an aside, just about all my reviews gets four or five stars for the simple reason that the memoirs come highly recommended by other readers. I don’t finish books that I don’t enjoy.

So, five stars for The Quiet Room. The story is rather unique because it’s not only from the author’s perspective, but also from the candid perspective of each of her parents, her brothers, her psychiatrist. What I find interesting about this 1994 book is that it was published in a decade that saw the biomedical model of mental illness take off. There was talk in the book along the lines of “getting the chemistry right,” “finding the right drug and drug combinations” and how the newer antipsychotics were changing the treatment landscape. Lori Schiller  Continue reading “The Quiet Room”

A psychophysical approach to treating schizophrenia

In my memoir, The Scenic Route: A Way through Madness (coming out in the New Year), I devote part of a chapter to The Alexander Technique. In researching the technique, I came across the name of Kitty Merrick Wielopolska who was a student of the technique in the 1930s. I haven’t read her book, but it seems that it would be well worth adding to a collection of schizophrenia memoirs that have credited healing to a non-mainstream approach. In this interview, I also learned for the first time about a relatively recent psychotherapy (phenomenological psychotherapy) which my experience tells me shows great promise in breaking the habitual patterns of thought that Alexander termed a “misuse of the self.”

Never Ask Why

THE LIFE ADVENTURE OF KITTY WIELOPOLSKA (1900-1988)
Her experience with the Alexander Work, schizophrenia and the psychic state

Published by Novis Publications, January, 2002. www.novis.dk

(NOVIS is a small publishing company specializing in publishing literature on the Alexander Technique)

The following is from Joe Armstrong’s interview with Kitty that was published in 2001 several years after her death

From the moment I met Kitty (Catharine Merrick) Wielopolska in 1966 – over ten years before we began recording these stirring conversations about her struggle with schizophrenia 1  – I felt she was an extraordinary person. But after hearing for the first time in these talks about her many breakdowns and the inspiration for getting herself well that she found in the Alexander Work, 2  I realized that there were many more reasons why she was so very remarkable than I could ever have imagined.
While these conversations don’t claim that Kitty used the Alexander Work itself as a direct means to her recovery, 3  I believe they do show that her intensive experience of it had a substantial indirect influence on her ability to find her way to health. This is because the Alexander Work is based on the conception that it is impossible to separate “mental” and “physical” processes in any form of human activity, and it would therefore require us to regard a condition like schizophrenia not just as a “mental disorder.” It would also require us to take into account the “use” of the whole person when diagnosing the disorder and searching for ways to treat it. “Use,” in Alexander terminology, refers to our combined manners of responding, moving, and thinking as they are manifested in our overall behavior at any given moment, whether the behavior is governed subconsciously by our habits or is consciously guided by our chosen intention.

With that in mind, it’s very interesting to read that at least one branch of psychiatry has recently been taking a psychophysical approach to schizophrenia and is focusing on the same area of concern that F.M. Alexander found to be central in re-educating the use of ourselves as a whole. Phenomenological psychiatrists such as Shaun Gallagher are considering the possibility that the “voices” heard by people diagnosed as schizophrenic stem essentially from a breakdown in what he calls our “protentional function.” This governs our ability to “anticipate experience which is just about to happen,” in contrast to our “retentional function,” which governs how we “retain previous phases of consciousness and their intentional content.” Gallagher also says that our sense of “agency” in both motor action and cognition “depends upon  Continue reading “A psychophysical approach to treating schizophrenia”

Ketogenic diet and schizophrenia

The case for the link between inflammation and schizophrenia is getting stronger.

From Psychiatry Advisor

A specialized weight loss diet preferred by some bodybuilders may be effective in treating schizophrenia, according to research published in Schizophrenia Research

Although further studies using other animal models are needed to confirm these findings, the authors wrote that “as [a ketogenic diet] has been safely and effectively administered to humans in different pathological conditions, [this treatment] has the potential to be swiftly translated into a novel, safe and effective management of schizophrenia.”

Reference

Kraeuter AK, Loxton H, Lima BC, Rudd D, Sarnyai Z. Ketogenic diet reverses behavioral abnormalities in an acute NMDA receptor hypofunction model of schizophreniaSchizophr Res. 2015; doi:10.1016/j.schres.2015.10.041.

A case report From US National Library of Medicine  National Institutes of Mental Health website

Nutr Metab (Lond). 2009; 6: 10.
Published online 2009 Feb 26. doi:  10.1186/1743-7075-6-10
PMCID: PMC2652467

Schizophrenia, gluten, and low-carbohydrate, ketogenic diets: a case report and review of the literature

Abstract

We report the unexpected resolution of longstanding schizophrenic symptoms after starting a low-carbohydrate, ketogenic diet. After a review of the literature, possible reasons for this include the metabolic consequences from the elimination of gluten from the diet, and the modulation of the disease of schizophrenia at the cellular level.

Case report

C.D. is a 70 year-old Caucasian female with a diagnosis of schizophrenia since the age of seventeen. Her diagnosis was based on paranoia, disorganized speech, and hallucinations. She reported both auditory and visual hallucinations, including seeing skeletons and hearing voices that told her to hurt herself. According to her history, she has had these hallucinations on almost a daily basis since the age of seven. C.D. has also been hospitalized at least five times over the last six years for suicide attempts and increased psychotic symptoms. She has attempted to overdose on medications, cut herself, and ingest cleaning agents. Her most recenthospitalization was five months prior to initiating the low-carbohydrate diet. She has discussed both her suicidal ideations and her hallucinations with her psychiatrist who has tried to optimize her medication regimen in an effort to improve her symptoms, but this has been largely unsuccessful. Her prior anti-psychotic and mood-stabilizing medication regimen has included lithium 900 mg qhs, olanzapine (dose unknown), ziprasidone 40 mg bid, aripiprazole 30 mg qhs, lamotrigine 100 mg bid, and quetiapine 900 mg qhs. She is currently managed on risperidone 4 mg qhs.

Continue reading “Ketogenic diet and schizophrenia”