Desperate housewife

A reader contacted me. He was clearly alarmed at the direction in which he felt I personally am heading. He referred to my “grasping at straws”, my being “on a crusade”, and urged me to avoid “snake oil”. He expressed his opinion that all of this plus maternal guilt was clouding my ability to think rationally. According to the reader, this means that I am not providing effective support for Chris. Furthermore, by claiming center stage I am placing my needs before Chris’s. My blog, he feels, is a coping mechanism.

Since the reader knows me only through what I have written, his perception is valid. I believe in turn that I have pushed the bounds of his comfort zone.

My blog is about holistic recovery from schizophrenia. It also happens to include many references to my own understanding/healing process that was needed under the circumstances. The Cambridge Online Dictionary defines holistic as “relating to the whole of something or to the total system instead of just to its parts.” My interpretation of holistic has grown to include self-examination as a component of Chris’s and my healing process. I submit that looking at how I may have contributed to Chris’s existential dilemma is a valid way forward. I do not feel “guilty” and neither should anyone in these circumstances. Guilt doesn’t heal people.

Holistic recovery means that we are taking advantage of what healing information is currently out there and available. The information is not from traditional medicine. Going holistic means moving off level one of the healing pyramid. Level one is about treating illnesses, not just mental illnesses, with vitamin therapy, diet, medications and surgery, where necessary.

Once we move off level one we are headed into the realm of energy medicine, energy psychology, psychotherapy in its many branches, acupuncture, homeopathy, yoga, meditation, chakras, shamanism, out of body experiences, the Akashic records, meaningful coincidences, quantum physics, near death experiences. These pick up where Dr. Hoffer and other proponents of orthomolecular medicine left off. (See: Energy psychology and Emotional Freedom Technique – April 21. 2009.) When orthomolecular medicine was introduced it tread on a lot of people’s comfort zones. It still does, to some people.

All of the therapies that I discuss in my blog incorporate the idea in one form or another that human beings are energy masses. We vibrate. Our molecules rub up against other people’s molecules. We have cellular memory. The individual has his own energy field, but the family also has an energy field. I believe that psychotherapy as a discipline implicitly acknowledges our molecular co-dependence but does not usually describe itself using these terms.

Correcting misaligned energy can be done physically and psychically. It can be done by a doctor, a shaman, a psychiatrist, a priest or through your own thought process. This is a new concept that is vying for a place alongside orthomolecular medicine and psychotherapy in treating mental illness. New ideas invariably disturb people’s comfort zones. They take a long time to gain acceptance.

I occupy center stage in my blog because I write it. Writing any blog seems like an inherently narcissistic act. Where I hope my value added lies is precisely because I am the mother and I am willing to share some of myself and Chris with others. Chris and I have undergone many of the therapies together, which means I can report on them with some confidence. Publishing this may leave people with the impression that I am desperately clutching at straws and trying to convince people that if people would only do what Chris and I are doing, all will be well. We know it doesn’t work that way.

A holistic approach has taught me to appreciate that there are no such thing as coincidences. By contacting me when he did, my reader has helped me think about perception. I am sharing Chris’s and my experiences in the higher levels of healing to allow you to cherry pick what you want from the realm of healing possibilities. It is not desperation on my part that drives me to investigate these rather unusual therapies for Chris. These therapies have helped Chris to heal in ways that the medications did not do. They might just do the same for you.

The shaman’s blow

The assemblage point shift is similar in principle to electroshock therapy. Both therapies can be used to address depression, mania, schizophrenia, and catatonia. However, shifting the assemblage point is noninvasive compared to electroshock. It complements Hoffer’s and Osmond’s understanding of the link between the hallucinogenic plants of the American Southwest and the state of mental well-being. (See: Why it is an honor to pay income tax – April 16, 2009)

In Castaneda’s The Fire from Within, Don Juan repeatedly warns about the health dangers that come from an assemblage point that has been knocked off center. Both legal and illicit drug use can knock an assemblage point off center. Don Juan uses peyote and other medicinal plants to induce a hallucinatory state in Castaneda. To bring him back to a balanced state afterwards, Jon Whale observes that Don Juan surreptitiously gave the author a quick sharp blow to the shoulder blade, popularly referred to as the shaman’s blow.

Dr. Whale has observed that psychiatric drugs do a poor job of moving the assemblage point back into position. According to him, psychiatric drugs do not take into account the complexities of the endocrine system and leave the patient in a chronic depressed state rather than correcting the situation. Dr. Hoffer’s niacin treatment is, in my opinion, another way of realigning the assemblage point. Whether you hallucinate naturally (e.g. schizophrenia) or unnaturally (e.g. mescaline and peyote), the antidote is the same: moving the assemblage point back into its correct position.

Trauma in suburbia

The trauma or shock basis of schizophrenia seems to be accepted by the holistic medical community but does not get a lot of play in the mainstream medical community. In fact, no medical doctor we consulted ever raised the issue with us. What they did say was a little different. I remember being asked by two different doctors what Chris was like at the age of ten. This seemed like a strange question at the time. I was too shell-shocked myself from the diagnosis to ask them why they raised the question. So, instead I answered,”well, uh, let’s see. He was overweight and into playing Magic cards. Other than that, there’s not much to report. He had friends, he seemed normal”.

After learning about the role of shock in schizophrenia, I reviewed Chris’s childhood for signs of shock, but nothing I could think of pointed to a dramatic, isolating event. We lived in suburbia – how dramatic is that? We went to church, my husband and I hadn’t divorced, Chris and his brothers attended Cub Scouts, we had neighborhood boys tearing through the house in great numbers. It seemed white bread boring compared to the kind of shock that schizophrenia produces on the radar screen.

What I do know is this: Chris was a ten month pregnancy and he barely moved in utero. That is unusual. His birth was long and difficult. He didn’t have a lot of energy as a child but he also never got sick. He was abnormally healthy, almost supernaturally so. I did find it a bit strange that a child who never even had a cold developed severe acne as a teenager. Dr. Abram Hoffer observes that his patients tended never to be sick as children and that many people who subsequently develop schizophrenia had severe acne in their teenage years. (Severe acne is characteristic of pellagra, or lack of vitamin B3.)

Chris was not given to emotional outbursts and apart from crying as a baby I remember seeing him cry only once when a door slammed on his finger. He had trouble making choices and he avoided confrontation. He left it to others to choose for him. Me: “Carrots or peas, Chris?” He: “Oh, I don’t care, you decide.” While this was troubling, it wasn’t so troubling that we thought about doing something about it. Chris was a thinker and he was musically talented. He did well in school and he had interests and activities so we overlooked this aspect of his personality, hoping that time would rectify it. I remember thinking, this kid is too perfect. Being perfect was troubling, even then. I felt we were overdue somehow for “the big one.”

A short history of antipsychotics

Dr. Abram Hoffer has much to say on what happened to mental illness after the introduction of atypical antipsychotics in the 1970s. Atypical antipsychotics are the second-generation antipsychotics, which have fewer side effects than the first-generation “typical” antipsychotics introduced in the 1950s. The second-generation antipsychotics are tranquilizers that still produce side effects. With the second-generation drugs, people were fit enough to leave the hospital but not fit enough to hold down jobs. Psychiatric hospitals emptied, but the streets filled up with people unable to manage their medications or who preferred a life unmedicated to a life and and spirit controlled by medication.

Dr. Hoffer writes: “I am pleased with my medical colleagues who are quickly moving into this modern paradigm (megavitamin therapy), and am very frustrated by the massive inertia of my psychiatric colleagues who are still waiting for the Holy Grail, that new tranquilizer which appears every year, which will do for schizophrenia what insulin does for diabetes. The number of homeless chronic schizophrenics in the streets of all large American and Canadian cities is evidence of their inability to do more for them than we could do in 1950 before we had any tranquilizers. But at least then we had hospitals which provided shelter and food and some care. Today the downtown slums have become the surrogate mental hospital beds for the chronic patients whose treatment has been wholly tranquilizers.”

In the United States, a 1951 amendment to the 1938 Food, Drug, and Cosmetic Act meant that all the new drugs produced after World War II, which included second-generation antipsychotics, as well as antidepressants and antibiotics, could only be issued by prescription.When medication became the new Holy Grail, megavitamin therapy was tossed out. It lived on in communities of adherents here and there, but their voices were drowned over the next few decades as the number of antipsychotics on the market proliferated.

The tyranny of vitamins

I am still trying to figure out how Dr. Hoffer got such great results using a small amount of supplements with no recommended changes in diet (e.g. elimination of gluten and sugar) and no talk of psychotherapy. A reader has pointed out to me that Dr Hoffer does indeed recommend eliminating or restricting dairy, gluten, sugar and junk food in the diet. That is absolutely correct. However, for many years before the importance of diet became recognized in treating mental health disorders, Dr. Hoffer just carried on with his basic vitamin recommendations (and medications when necessary) and got good results.

Perhaps the most important reason that Dr. Hoffer had such success with his patients is that he believed in what he did. He encouraged his patients and their families to think that they could recover using vitamins. He used medications sparingly. Belief is everything, especially coming from a doctor. I also think he got these results because his patients didn’t get side tracked by competing claims.

For the past thirty years or more we have been told that the newer (atypical) antipsychotics are better than the older (typical) antipsychotics. We have gotten further and further away from challenging whether antipsychotics are really needed in the first place. We have allowed ourselves to become managed by pharmaceuticals, but never cured. Is it possible that this same thing is happening with vitamins?

Today, vitamins are big business. They are state-of-the-art. They are well-researched, very good and adaptive. Alas, I have become immobilized through too much specialization and choice. I’m afraid of getting it wrong. For vitamin C you have a wide choice of delivery and added benefits, e.g. powder, liquid, capsule, with varying combinations of other vitamins and minerals. Buying vitamins is like ordering a coffee at Starbucks. I’d just like a regular coffee, thanks.

Chris is taking way more vitamins than Dr. Hoffer ever recommended, and he still isn’t in a position to pay income tax. Here’s what taking 35 supplements a day entails. The pills, powders and liquids have to be carefully measured, the pills put in packages and labeled. There is no plastic thingy big enough to hold all the pills so I put them all in paper packs, which I cut, fold, tape and label. Enough to last seven days or 21 paper packs in all. This goes on week in, week out. All the vitamins have to be shipped to our home. There is always the danger of running out. All of these vitamins, Chris’s doctor has told me, are crucial to his some aspect of his functioning.

I would love to scale the vitamins back to just the Dr Hoffer basics. My husband and Chris don’t seem inclined to rotate the position of chief pill dispenser. They are not as methodical as I am about the procedures involved. This is why women are entrusted with childcare, I remind them.

Believing in recovery

Many of us don’t believe in recovery. We think we do, but we are often unwilling to take the necessary steps. While I am admittedly hard on doctors, doctors can only get away with what they do because they have you as a patient. You may be of the scientific persuasion, a person who reassures him/herself with facts, double-blind studies, and the latest findings in leading scientific journals. You and your doctor will no doubt be very sympatico. When your doctor tells you there is no hope, you will believe him because it fits with the kind of person you are. You will continue to take your meds and be a good patient. You are most likely very conversant with what is written in the product literature.

The technical language of psychosis is so dreary it is hard to muster any hope. Prodromal symptoms, extrapyramidal symptoms – this vocabulary is how schizophrenia is introduced to new patients and their worried relatives. A big downer. When Chris was first hospitalized five years ago, the social worker told me brightly that why, in five to 10 years time, exciting changes were foreseen. I believe she was alluding to a miracle cure. The problem was, Chris didn’t have five to 10 years to wait for something that had eluded medical science for the past 100 years. He needed to start getting better immediately.

It is now over five years for Chris and I have yet to see that miracle cure, although I hear there is one underway. Nor do I expect one. It has taken me at least four years to realize that schizophrenia isn’t all about the biochemistry. Your doctor believes it’s all about getting the biochemistry right, though. In my experience, it’s not just the doctor prescribing medications who talks almost exclusively biochemistry, it may also be the doctor who is trained in alternative, complementary medicine. An MD after the name still makes doctors think mainly in terms of biochemistry.

Like Chris’s doctor who conceded initially that vitamins may not help, but they probably don’t hurt, this is how most medical doctors view the psycho/spiritual side of psychosis. They give it a place, but not a big one. Then they get right back to focusing on the biochemistry. The psychiatrists who specialize in certain therapies, such as Jungian, Freudian, Adlerian, Gestalt, etc. have a much broader perspective on the mind’s power to heal itself. These kinds of doctors are a luxury for many. We have also been told for the past several decades that “talk therapy” is of little help for schizophrenia.

If you are going to reach beyond a purely disease approach, become open minded to the rich tapestry of life, to writers, poets and people who think differently than your doctor does about the human condition.

Why it is an honor to pay income tax

In the 1950s, Dr. Abram Hoffer, together with Dr. Humphrey Osmond, successfully treated hundreds of schizophrenic patients at the Saskatchewan Hospital, with supplements aimed at correcting the body’s biochemical imbalances, a treatment approach later termed “orthomolecular medicine.”

Dr. Osmond and his student Dr. John Smythies noticed that schizophrenic hallucinations are like hallucinations suffered by otherwise normal people who have taken a bad mescaline trip. Mescaline belongs to a family of psychedelic compounds known as phenethylamines. It is present in several cactus species of the American Southwest and the Andes mountain range of South America and used by native American tribes in certain religious and mystical practices. Adrenaline, which is naturally produced in the body, is similar in its properties to mescaline.

Drs. Hoffer and Osmond hypothesized that schizophrenics produce an excess amount of an amino acid similar to adrenaline (which they called “adrenochrome”); this amino acid is also produced naturally in the body. Dr. Hoffer determined that adrenochrome belongs to a different family of psychedelic compounds known as “indoles.” (LSD is an indole.) Dr Hoffer prescribed niacin in high doses to reduce adrenochrome levels. It works.

Dr. Hoffer defines recovery from schizophrenia as threefold: The person is able to function well with friends and family, is free of signs and symptoms, and is able to pay income tax.

Dr Hoffer is still in the minority of doctors and institutions who think so optimistically about schizophrenia. The standard medical opinion is that the most one can expect is managed recovery, quality of life, and part time work if any. Dr Hoffer expects more. Why are most so-called experts setting the bar so low? It surely has something to do with the word “cure”. Many people shudder at the use of the word cure” in the context of schizophrenia. A cure simply means that someone with an illness has become healthy again or it can be the solution to a problem. If you rely solely on pharmaceutical solutions, curing schizophrenia is difficult, if not impossible.

Be wary of institutions that talk about ending discrimination of the mentally ill, e.g. the problem with mental illness is “stigma”. No, the problem with mental illness is that people are not getting well in sufficiently large numbers. The mentally ill have been discriminated against because they haven’t been seriously helped to get well. Most institutions promote mental illness as chronic and hopeless. Let’s not set the bar so low. Why, for heaven’s sake, instead of celebrating people whom they seem to regard as chronically disabled, don’t these organizations say that they are dedicated to helping people with serious mental illness get over it and get on with their lives? Why not, indeed?