Holistic Recovery from Schizophrenia

Sara Weber, party pooper*

I just reread the meditation article I posted yesterday. An extract appears below. I’m always suspicious, when I read things like meditation is good for everybody except the mentally unstable, that the people pushing this opinion are trying to keep schizophrenia under the paid protection of psychiatry. Before I wised up, I used to ask the opinion of Chris’s psychiatrists as to different ideas that I would like to try with him, e.g. sound therapy, assemblage point shifts, or even vitamins for crying out loud, and what do you know, they were not in favor of him attempting these things. These things, after all, are not under their control. These kind of weird things, after all, might destabilize him. Well, Chris has tried these weird things, and they have had the opposite effect — they have integrated him.

extract
But Sara Weber, the chairwoman of the Contemplative Studies Project of New York University’s postdoctoral program in psychotherapy and psychoanalysis, expressed some skepticism.

“Believe me, it’s a great relaxation and everyone needs to relax, and probably relaxing makes everyone feel better and promotes some of those things,” Dr. Weber said. “And some people can deal with what arises just by calming down. But other people who have been through trauma disassociate and go into a deadened space where they don’t feel. So what happens if that breaks down in the middle of one of those bliss sessions?”

In her experience, Dr. Weber said, the technique could even have adverse side effects. “Some people report falling apart,” she said. “They can have very intense and bad emotional experiences.

You might also like a real life example of this attitude.

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I’m getting sensitive about being “a square.” Tell me that the word “party pooper” isn’t hopelessly out-of-date. Please? I’ve never heard of Russell Brand, the comedian snuggling up to David Lynch in yesterday’s photo. I have heard of David Lynch, though. He’s more my age. The other night I asked my middle son Alex not to drive the car all over “Hell’s half acre.” He broke up laughing.

Look who’s meditating now?

Today’s post, Look Who’s Meditating Now, is brought to you courtesy of the New York Times.

POSTER BOY Russell Brand with David Lynch at the December Met fundraiser for Mr. Lynch’s foundation, which promotes Transcendental Meditation.

There are so many kinds of meditation, I would like to know from readers what kind of meditation you recommend for people who have experienced extreme states, and what kind should be avoided.

Herbalism in Turkey

Interesting article from Today’s Zaman.*

A prominent herbalist in Turkey, Şeref Menteşe, has lambasted drug companies, saying the side effects of commonly prescribed drugs have resulted in too many illnesses in the country, costing billions of dollars for the treatment of toxins released from the drugs.

The son of an immigrant worker in Germany, Menteşe pursued a degree in medicine but dropped out during his senior year after realizing how drug companies interact with future doctors and surgeons during their schooling. “One day, we were told experts from drug companies would brief us on how to write prescriptions for drugs. That was the day I realized there was a huge conflict of interest between doctors and big pharmaceutical companies. I said to myself this is not the way to go about healing patients under the influence and directives of drug lords,” he recalls.

Read the rest of the article here.
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About Today’s Zaman
I welcome all our readers across the world who are keenly interested in developments in Turkey and its immediate geographic vicinity. The editorial staff and I are well aware of the fact that this paper, in both its print and Web editions, is being closely followed by a great number of people all over the world on a daily basis. The reason is simple yet also complex: Turkey stands at the world’s geographic and political crossroads. In recent years it has become one of the most closely followed and frequently discussed countries.

The literary agent of my dreams

I’ve haven’t blogged for a while and my posts will be infrequent over the next little while. It’s good news. A literary agent contacted me out of the blue to send him my manuscript, thus bypassing my having to send him a proper query letter and chapter summaries. The manuscript is with an editor right now and I’m scrambling to keep up with all of the suggested changes. I’ve had to stall the agent while I work nights and week-ends to whip the memoir into better shape.

Of course, there is every possibility that the agent may not like what I send him, so I should stop daydreaming about seeing myself at the altar with him. We haven’t even been out on a date.

Mick Jagger of literary world: Martin Amis credits Tina Brown with making him the man he is today

Read more: http://www.dailymail.co.uk/femail/article-1190271/Ex-girlfriend-reveals-lovers-affairs-literary-lothario-Martin-Amis.html#ixzz1GlMDZKGA

Weirdly well

Chris phoned me last night from the church. Could I come and pick him up? He wasn’t feeling well. I immediately got excited. When I got there and he climbed into the car, I put my hand on his forehead and it felt feverish. This was a good sign. What part of you is sick? I asked him, but not expecting him to really be able to put his finger on it. You see, Chris, to my knowledge, has never been sick. He doesn’t have the vocabulary because he has no reference point.

While his middle brother had perpetual ear aches and his youngest brother had an asthma like condition,  Chris has never been sick. Not a toothache, not an ear ache, no vomiting, nothing. He is supernaturally well. Dr. Abram Hoffer observed this abnormal good health in his patients who had been diagnosed with schizophrenia. They were never sick.

When Chris truly lives less in his mind and more in his body, he will get sick like the rest of us, or at least, that’s my hope.

By the time we got home, Chris no longer seemed feverish. What he claimed he had was nausea. He went to bed immediately, and was up bright and early this morning as if nothing had happened.

EC buys same old chestnut

Thanks to Stephany for alerting me to this European Commission press release about EC approval of the latest injectable schizophrenia drug.

There is no new information in this release, the EC has bought the same tired justifications from doctors with ties to pharma about the need for adherence to schizophrenia medication. I’m bored already.

Also not new in this article is the figure of one in a hundred. Schizophrenia, apparently, is still occuring in the population at the rate of 1%, the same as always. Schizophrenia’s identical twin, bipolar, is now as overexposed as Paris Hilton at a party, but good old schizophrenia doesn’t budge in the rankings. This makes me wonder what’s the matter with schizophrenia. If we believe that these so-called mental illnesses are being overprescribed, why isn’t the rate of schizophrenia in the population reflecting this? What is going on?

Out in left field

Today’s post is taken from the New York Times.

Handedness clearly runs in families. The 2007 paper by the group at Oxford identified a gene, LRRTM1, that they discovered in the course of studying children with dyslexia, and which turned out to be associated with the development of left-handedness.

Dr. Francks, who is now at the Max Planck Institute for Psycholinguistics in the Netherlands, recalls that the discovery made headlines and attracted a great deal of attention, the more so because this gene was also found disproportionately in people with schizophrenia, even though none of these connections are simple or well understood. “We’re not looking for a gene for handedness or a gene for schizophrenia,” he said. “We’re looking for subtle relationships.” The gene affects the ways that neurons communicate with one another, he said, but its mechanisms still need to be studied

I was the only person growing up in my family who is left handed (and immune compromised.) One of my sister’s is right handed and dyslexic, or, I suppose I should say “has a diagnosis of dyslexia.” Chris is right-handed. Our middle son, Alex, is left-handed. All of my husband’s immediate family is right handed. The New York Times article deserves a read, but it doesn’t add anything new to schizophrenia, that forever illusive “organic brain dysfunction” which tantalizing is linked to just about everything in life that involves being human.

None of it turns out to be simple. The idea of links to schizophrenia has been particularly persistent, but schizophrenia is a complicated and probably heterogeneous disorder, and studies of different populations show different patterns; last year, a study found no increased risk with non-right-handedness for schizophrenia or poorer neurocognition.

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On the Left Hand, There Are No Easy Answers, Perry Klass, MD, March 6, 2011

Inside Mongolian shamanism

I’m quite excited about my current bedside reading, The Horse Boy: A Father’s Quest to Heal his Son, by Rupert Isaacson. It’s the story of a father helping his five year old son overcome autism by travelling to Mongolia to ride horses and undergo shamanic ceremonies. I’m only part way through the book at the moment, and hope to do a more in depth review later. The book explains that shamanism was the ancient religion of Mongols until the Soviets tried to stamp it out. Following the break-up of the Soviet empire in the 1990s, shamanism has been slowly making a comeback. Today there is even an association of Mongol shamans. In fact, the word shaman is a Siberian word meaning “to see in the dark,” referring to people who experience other realities.

What is especially gripping about this book is the in-depth documentation of what Isaacson, his wife and son experienced in Siberian and Mongolian healing ceremonies. I have written elsewhere in this blog about Olga Kharatidi’s book, The Master of Lucid Dreams, about her journey to the shamans of Uzbekistan to heal trauma, but the healing ceremony was not as well explained as in the Isaacson book.

The thought that so-called mental illness is a gift, if properly embraced and chanelled, is not especially new in Western circles, but Isaacson’s contribution is to anecdotally document how a specific problem (autism) can treated by aboriginal practices. The way these problems are viewed is similar to the Family Constellations that Chris and I went through. There is an ancestor element (a family curse) that needs atonement. Bert Hellinger, who popularized Family Constellations, drew on his work with the Zulus in Africa.

Several shamans questioned whether Isaacson’s wife had an immediate female ancestor with a strange mind. (She did.) Instead of saying, “mentally ill” they wondered if she had an ancestor who was “like a shaman.” The wife’s grandmother became bipolar after the death of her eight year old son and was institutionalized towards the end of her life. The shamans referred to her as “like a shaman” because some shamans have mental problems before they start their training. The shamans see this as a sign that these people are destined to be shamans. 

Isaacson thought about the shamanic healers he had come into contact with over the years in his career as a journalist. They were odd, often spoke in riddles and were “away with the fairies.” Isaacson notes, however, that it was interesting that they all had integral roles in their communities, rather than being marginalized as so often happens in industrialized societies.

The self-help community writes a good deal about how to treat people in their spiritual crisis, relying on shamanic beliefs, but here is an actual documented shamanic practice that makes fascinating reading. The family goes through the rituals meted out by nine shamans, who ask them to do some rather bizarre things like wash their more intimate parts with vodka, have vodka and curdled milk spat on their faces by the shamans, and be whipped (including the son).

At the end of the nine shaman ceremony, the son, who enjoyed it all immensely, walked over to a small Mongolian boy and declared him his “friend.” His first friend ever. Perhaps seeing what his parents were willing to go through for him and accept on his behalf was part of this breakthrough.

The shaman ceremony reminds me of the breakthroughs that Chris had after the assemblage point shift and the Family Constellation. Within ten minutes of finishing the AP shift, he immediately started walking taller and the color flooded back into his pale facial skin. About three months after the Family Constellation Therapy, he began to be sociable with people. These results can be achieved rather quickly with shamanic ceremonies. Ritualistic ceremonies are essential rights of passage that have been largely forgotten by the people and too often denigrated and ignored by science.

Imagine Joseph Campbell knowing nothing of schizophrenia

We all have to start somewhere, and mythologist Joseph Campbell is no exception. Amazingly, according to the author, he was beavering away in his academic ivory tower of mythology, and it had to be brought to his attention late in his career (1968) that what he was doing had a real world application to schizophrenia.

In an unintentionally comical response to an invitation to deliver a series of speeches at the Esalen Institute in California, he suggested that rather than speak on schizophrenia, he’d deliver his talk on James Joyce instead.

James Joyce, the author of Finnegan’s Wake? How did he again miss the obvious? Well, miss it he did.

Below is a fragment from the word salad of Joyce:

As the lion in our teargarten remembers the nenuphars of his Nile (shall Ariuz forget Arioun or Boghas the baregams of the Marmarazalles from Marmeniere?) it may be, tots wearsense full a naggin in twentyg have sigilposted what in our brievingbust, the besieged bedreamt him stil and solely of those lililiths undeveiled which had undone him, gone for age, and knew not the watchful treachers at his wake, and theirs to stay. Fooi, fooi, chamermissies! Zeepyzoepy, larcenlads! Zijnzijn Zijnzijn! It may be, we moest ons hasten selves te declareer it, that he reglimmed? presaw? the fields of heat and yields of wheat where corngold Ysit? shamed and shone. It may be, we habben to upseek

Joyce spent the remaining years of his life worried that his work on Finnegan’s Wake caused his daughter’s schizophrenia. Nature or nuture? You decide.

The link in this blog is from Schizophrenia: The Inward journey, by Joseph Campbell, 1970, published in Myths to Live By

Community myths about schizophrenia recovery

I came across the sad story the other day of Tom Cavanagh, a young, Harvard graduate and professional hockey player who killed himself.

For those closest to Cavanagh, his illness became apparent in November 2009 when he suffered his first psychotic episode. He was briefly institutionalized and, in what would become a pattern, responded well to medication and was released. He even joined the AHL’s team in Manchester, N.H., later that season, playing in 17 games before suffering a shoulder injury.

He was hospitalized again in April after becoming violent and breaking furniture in a doctor’s office. But he was well enough to begin this season with an AHL team in Springfield, Mass.

“It’s amazing how he was able to perform at such a high level, knowing what we do now,” said Riley, Cavanagh’s coach at Springfield. “But God only knows what he was dealing with outside the rink.”

One can marvel at the fortitude of this young man to keep himself together enough to get out and play professional hockey despite the diagnosis of schizophrenia, or one can wonder what was everybody thinking? I’m in the latter camp. Schizophrenia is a major crisis point, and it’s not business as usual. The business as usual approach to schizophrenia seems positive and encouraging, but it is not. I call it false positivism.

When we first consulted a psychologist about Chris’s strange behavior, Chris was two weeks away from going back to university a continent away from where we lived. Everybody’s expectations, including ours and Chris’s, were focused on that goal.  The psychologist seemed  to think that it was just a matter of getting the right meds and then Chris would be back on track at university. He suggested that we arrange an appointment with a psychiatrist connected with Chris’s university before classes resumed for the fall term. When Chris was admitted to hospital a few months later (still not on meds at that time), the doctors and social worker talked of the possibility of Chris resuming his classes, being on meds, and having a social worker drop in to check on him once a week. That dream was short lived as Chris actually got worse while in the hospital. He dropped out of university when he was released three months later.

A rosier outcome than was Chris’s at that time can happen, but how often does it? How realistic is it for someone to pick up their hockey, their studies or their job so quickly after receiving an earthshaking diagnosis? We know that people get short changed in mental health care because of the expense of time in Western cultures. We are told that pills will make us productive. Schizophrenia, diagnosised or otherwise, means that something isn’t working and it’s time for a time-out, a long time out. Perhaps this young man, Tom Cavanagh, was living out the dreams of his father and the rest of his family, and it got to the point where he couldn’t go on as he had been doing because he didn’t know who he was. “He would tell me that he can’t feel any emotion, that he can’t engage with people, that he felt disassociated and that this was the way he felt his whole life,” Joe Cavanagh said. 

Author Joseph Campbell sees a schizophrenia breakdown as an inward and backward journey to recover something missed or lost, and to restore a vital balance.  Don’t cut the individual off, work with him, Campbell advised.

People like Tom Cavanagh are given drugs and told the falsehood that the drugs are the best and the quickest way to manage the life you had before you got side-swiped. Your parents will be relieved and optimistic and you will become part of the larger community myth of recovery. There is no mention of spiritual and existential problems that need to be addressed. This scenario works until it doesn’t. Tom Cavanagh couldn’t sustain the myth. What he needed was a lot of therapeutic help and understanding up front. He would need intensive support for a long, long time, but he could recover. This is not part of the medication based myth of recovery.

Exposing the business as usual myth of recovery should put the spotlight back on real recovery as a long, slow process needing periods of rest and reflection and minimal to no use of medication. The basis of being told this should come from a place of optimism, that there is a brighter tomorrow and it will come, with effort, just not now. Sometimes doctors will explain recovery this way, but often what you are told comes from a base of pessismism. Doubt is interjected because the medical community, by and large, doesn’t believe in the drugless optimistic approach.  When the myth of the speedy recovery by drugs is exposed, the mental health community lies to the public again by telling us that there was never any chance anyway. They now tell us that schizophrenia is a life sentence. In Tom Cavanagh’s case, the doctor painted a picture to the parents that death may be the only release for a diagnosis of schizophrenia. The obvious question that I would raise would be then why did you lie to me about speedy recovery?

Cavanagh’s doctor sat with the family later to explain why Tom might have done this. He told them how the schizophrenia can manifest itself in males in their mid to late 20s. It can be, he said, a raging fire that grows out of control.“He painted a rather dismal picture of what the future is for someone with this disease,” Joe Cavanagh said. “That’s why we’re happy that he didn’t hurt someone and he’s not in jail.”

The myth of the medical cure and speedy recovery is once again being use to prop up the community myth of the unhealable schizophrenic.