Holistic Recovery from Schizophrenia

Why I don’t invest my faith in the latest scientific findings

I am reprinting an interesting comment to Dr. Sandra Steingard’s Mad in America blog post entitled Why I Prescribe. The writer of the comment demontrates how fickle scientific “truth” can be. The option she refers to in her opening paragraph is the option to accept or decline meds.

Marianne on March 5, 2012 at 6:24 pm said:

I wish I had been given an option when I was 18 and heard voices. I am 62 now, and still hear them from time to time, but I have figured out what they are. I took “anti-psychotics” for years. They made me eat more and didn’t change the voices.

I had to go along with the doctors to get out of hospital, that is lie to them.

For several years, their theory was that schizophrenics had “too much dopamine”. In 1968, when I was started on phenothiazines, there was something called the Thorazine Shuffle, or “pseudo-Parkinsonism”.

One never hears that term now, even though the side effects still include Parkinson-like rigidity. I also found out that phenothiazines are actually pesticides and Parkinson’s didn’t exist before pesticides were used for killing pests. (Insecticides, herbicides, rodenticides).

Now there are so-called professionals telling people that Dopamine is the “feel good” chemical in the brain! I still have journal articles from the 1960′s and 1970′s with the theory that was the opposite, and also about when L-dopa was being used for Parkinson’s patients, with short-term effects.

Can you explain how dopamine went from causing schizophrenia to being the “feel good chemical” without some major tampering by scientists?

I also cannot find a doctor who will work with me to get off of drugs. A long history of a label has caused me extreme misery over the years.

If only someone had told me those voices were from inside of me, instead of ECT and meds, and counseled me that things would be ok…I was only 18. If only there had been some compassion.

Reply ↓

Sandy Steingard

on March 5, 2012 at 7:48 pm said:

Marianne-

Thanks for your comments. Dopamine is the neurotransmitter in the so-called pleasure and reward center of the brain. As Whitaker and others point out, there is no evidence that there is an abnormality of dopamine in the brains of people who hear voices or experience other psychotic symptoms. The dopamine hypothesis of schizophrenia – that there is too much dopamine in the brains of people who experienced psychosis -was proposed because the neuroleptic drugs are known to block dopamine. Over many years, scientists never found any evidence to support the dopamine hypothesis of schizophrenia.
Perhaps you could copy some of the articles from this website so you could discuss it with your doctor. Philip Thomas, MD posted an excellent blog on this topic today.

Sandy

Working the system

I just left a comment over at Michael Cornwall’s Mad in America blog post. In my comment I linked to an excellent article in the Los Angeles Times about the reasons behind the vast surge in the autism diagnosis.

The LA Times article provides plausible reasons for the jump in autism rates that are not what meets the eye. According to the author of the article, autism has boomed in large part because parents want access to state funded services, and they talk amongst themselves about how to work the system to their advantage.

Three-year-old Benjamin was nothing like the severely impaired children Bailey had seen in clinic waiting rooms. But he didn’t speak much, was mesmerized by ceiling fans and liked to be left alone.

On the day of his evaluation by specialists from the L.A. Unified School District, Bailey purposely didn’t feed him breakfast. “I wanted him to look as bad as possible,” she recalled. “It’s not like he didn’t deserve services. I just wanted to stack the odds in our favor.”

It worked. Benjamin threw a tantrum. Over the next three years, the district paid for speech therapy, motor skills training and the attention of a one-on-one aide throughout the school day.

….. Peter Bearman, a sociologist at Columbia University, has demonstrated how such social forces are driving autism rates.

Analyzing state data, he identified a 386-square-mile area centered in West Hollywood that consistently produced three times as many autism cases as would be expected from birth rates.

Affluence helped set the area apart. But delving deeper, Bearman detected a more surprising pattern that existed across the state: Rich or poor, children living near somebody with autism were more likely to have the diagnosis themselves.

Living within 250 meters boosted the chances by 42%, compared to living between 500 and 1,000 meters away.

The reason, his analysis suggested, was simple: People talk.

They talk about how to recognize autism, which doctors to see, how to navigate the bureaucracies to secure services. They talk more if they live next door or visit the same parks, or if their children go to the same preschool.

The influence of neighbors alone accounts for 16% of the growth of autism cases in the state developmental system between 2000 and 2005, Bearman estimated.

In other words, autism is not contagious, but the diagnosis is.

I thought about posting the L.A. Times article when it appeared in December 2011, but decided not to at the time. I try to stick to the knitting on my blog, meaning I stick to schizophrenia as much as possible, and weigh the pros and cons of posting information about other diagnoses, even though, there is much in common between many mental health diagnoses. I decided to post the link today because both the Cornwall article and the L.A. Times article are excellent contributions to our growing understanding of how social factors shape trends in mental health diagnoses diagnoses.

Cornwall writes:
When I-Ward closed I was transferred to an adult clinic as a therapist for about 3 years until the bio-psychiatry, big pharma agenda made possible by NAMI testimony got the statewide Bronzon legislation passed. That law said that so-called severely and persistently mentally ill adults should be given priority for the allocation of adult services that are funded by the state and federal government.

It was supported by bio-psychiatry claims based on their incurable brain disease model that asserted that consumers were best served to be maintained by medication and case management. The law didn’t say therapy had to be eliminated, but the statewide cowardly mental health director’s association saw the handwriting on the wall and decided to announce the wisdom of eliminating therapy ASAP to placate NAMI, and the growing power of Psychiatry in every county system.

Psychiatrists: Put away the prescription pads and bring out the controllers

A new industry has been born — the vast brain training industry, which is only going to increase in market share.

Being a natural skeptic, I am somewhat dubious about the claims that brain training will alleviate the symptoms of schizophrenia, but I applaud any efforts to help people get back onto their feet that don’t involve drugs. In my experience, almost any therapy that Chris undertook that didn’t involve drugs helped him improve without debilitating side-effects. The brain is not the mind, however, and it’s this distinction that may be lost when it comes to helping people overcome schizophrenia through the use of video games. Brain training implies that the person has brain and cognitive deficits, that as far as I know, have not been scîentifically proven when it comes to schizophrenia. Much of schizophrenia has to do with the “soft science” of treating emotional issues.
 
Treating schizophrenia: Game on

Michael Merzenich has a plan for how to convince sceptics of the worth of his brain-training video games: prove that the software can help people with schizophrenia.

Erika Check Hayden
29 February 2012

The brain-training industry — which was projected to grow from US$265 million in 2008 to between $1 billion and $5 billion by 2015 — markets games that claim to boost skills such as memory or focus in healthy adults. But for those likely to need it most, such as elderly people, there has been no convincing evidence that the games work any better than the mostly free activities that physicians routinely recommend, such as physical exercise, socializing with friends, taking up a new hobby or playing a musical instrument. “Really well-designed clinical trials to test the efficacy of these devices are few and far between. It’s sort of like the Wild West,” says Peter Snyder, a neurologist at Brown University’s Alpert Medical School in Providence, Rhode Island.

Merzenich, however, feels that he has fought long enough to prove the validity of brain training. Now, he says, it is time for regulators to weigh in. Treating schizophrenia with software would mark a change for psychiatry, which tends to focus on dispensing drugs in the first instance. Vinogradov says that the growing realization of drugs’ shortcomings and a shift away from the idea that brain deficits are immutable are sparking desire for alternative options.


“The dominant force in psychiatry has been the focus on treating symptoms, not the underlying dysfunction. The patient is this passive object to whom you give pills, as opposed to actively helping to stimulate constructive interaction with his or her environment,” Vinogradov says.


And Merzenich doesn’t plan to stop with schizophrenia. The Brain Plasticity Institute in San Francisco, another Merzenich-founded company, is studying brain-training software for conditions ranging from Alzheimer’s disease to traumatic brain injury. “If we do this in a disciplined way, with scientific confirmation that is beyond question,” Merzenich says, “we’ll very rapidly evolve into a very important aspect of psychiatric medicine.”

This could be your new relationship with your psychiatrist.
scene from The 40 Year Old Virgin

Another study shows biological view of mental illness increases stigma


from Acta Psychiatrica Scandinavica
Article first published online: 13 JAN 2012

Schomerus G, Schwahn C, Holzinger A, Corrigan PW, Grabe HJ, Carta MG, Angermeyer MC. Evolution of public attitudes about mental illness: a systematic review and meta-analysis.

Objective:  To explore whether the increase in knowledge about the biological correlates of mental disorders over the last decades has translated into improved public understanding of mental illness, increased readiness to seek mental health care and more tolerant attitudes towards mentally ill persons.

Method:  A systematic review of all studies on mental illness-related beliefs and attitudes in the general population published before 31 March 2011, examining the time trends of attitudes with a follow-up interval of at least 2 years and using national representative population samples. A subsample of methodologically homogeneous studies was further included in a meta-regression analysis of time trends.

Results:  Thirty-three reports on 16 studies on national time trends met our inclusion criteria, six of which were eligible for a meta-regression analysis. Two major trends emerged: there was a coherent trend to greater mental health literacy, in particular towards a biological model of mental illness, and greater acceptance of professional help for mental health problems. In contrast, however, no changes or even changes to the worse were observed regarding the attitudes towards people with mental illness.

Conclusion:  Increasing public understanding of the biological correlates of mental illness seems not to result in better social acceptance of persons with mental illness.

No surprise here. Despite increased pushing by pharma, academia and physicians of the biological model of “mental illness,” “no changes or even changes to the worse were observed regarding the attitudes towards people with mental illness. The results of this study correlate with the Auburn University study, which concluded:

In general, the disease view did not improve attitudes, except in terms of blame. It did, however, tend to provoke harsher behavior. In contrast, the psychosocial view induced treatment no different from that toward normal others. The results provide little support for the claim that regarding the mentally disordered as sick or diseased will promote greater acceptance and more favorable treatment.

Now, I ask myself, why would anybody think that labeling someone as sick and diseased (a stigmatizing label to begin with) would improve other people’s tolerance of the mentally ill? It would improve drug sales, though. (Just a thought.) What would improve people’s tolerance of the mentally ill are effective non-drug therapies that allow individuals to thrive and take their rightful place in society – the quicker the better. This amazingly simple idea seems to have eluded many people who claim they are helping the mentally ill. Many jobs depend on having a steady, long term supply of mentally ill clients. Lack of effective therapies and over-reliance of drug therapies will ensure that a large population of the mentally ill will continue be be stigmatized.

New schizophrenia memoir chapter

I’ve decided to post random chapters from my book into this blog. I’ve noticed that seeing the chapter “live”  sharpens my eye to make further editorial changes. So, what I will do is introduce some of the chapters that have already undergone extensive editorial work with a brief word of explanation. In this chapter, Chris has been admitted to hospital for the first time (during the first semester of his second year at university). He is living far away from home.

Further editorial suggestions are always appreciated.

Chapter 5 My Name is Legion On Sunday evening, the dean sent me an e-mail. He had received an encouraging verbal report on Chris from Jessica, the residence assistant at Chris’s dorm. She had visited with Chris for close to twenty minutes earlier that day and had delivered his guitar to him, which he was delighted to receive. She reported that he was about to be moved to the Early Psychosis unit of the hospital and that he already seemed to be much more aware of his surroundings than she had observed during the fall term — he was now making eye contact and his speech was clearer. They joked about hospital food compared to Trinity food. Chris told Jennifer that he wanted his family to know he was eating okay, doing fine, feeling healthy, and, as the doctors thought he might be released as an outpatient the next week, so he did not want his plane ticket cancelled.

Based on Jessica’s report, and comparing his own observations of Chris during the fall semester, the dean wrote that the news sounded encouraging. He added that during the fall, he had noticed that Chris was tired, spending long periods in the dorm hallways at night, simply staring, or sitting in the computer room for lengthy periods with no lights on. Whenever the dean spoke with him, Chris seemed surprised but answered briefly. At times, the dean continued, Chris would sit by himself in the dining hall, seemingly content to be alone; other times he’d seek out company but tended to watch from the periphery. Chris’s friends told the Dean that Chris often followed them to a pub but declined to go inside.

I heard later from the chaplain that Chris sometimes stood for long periods in the college courtyard, like a statue. Once he stood in the rain for hours, the rain thoroughly soaking his new tweed jacket. These revelations were painful, but perhaps none as painful as learning much later from Jane that when she and Jessica went to clean out Chris’s room, it was littered with plastic bags of excrement and bottles of urine. The turd in the planter had indeed been a harbinger of things to come. My sister noticed that Chris also kept a copy on his bookshelf of Karl Menninger’s classic, Whatever Became of Sin? When I probed Chris months later about his lack of eye contact, he said he couldn’t make eye contact with people because he felt his eyes would do them harm, but also that their eyes would do him harm.  He was becoming acutely aware of good and evil. This explained in part his reading preferences and why he spent every day that term on his knees praying.

For a few confusing days following Chris’s admission to CAMH, I didn’t have the contact details of the treatment team and I relied on reports from the dean, the chaplain and my sister. Three days after Chris was admitted, I got a name and a phone number from the chaplain of one of the doctors familiar with Chris’s condition. When I got through to her, I soon realized that Jessica’s optimistic assessment of the speed of Chris’s turn-around was bit premature. Chris’s belief that he was going to be allowed to come home turned out to be wishful thinking on his part.

“Well, he’s not one of our sickest patients,” the doctor said, but apparently neither was he one of their better patients. Her tone implied sick, very sick. “Our team here doesn’t think it’s a good idea for Chris to leave the hospital. He’s a voluntary patient, but if he pushes to leave the hospital to get on a plane,” the doctor warned, “we’ll change his status to certifiable.” 

“This is not our preferred option, ” she continued. “We’d prefer to keep the goodwill and trust. As a voluntary patient Chris will be given a day pass and allowed out today to go back to his dorm room and gather a few things.”

Before we finished our conversation, I had promised the doctor that our family would visit Chris as soon as we could arrange the plane tickets.  This year we would move Christmas to Toronto.

Peter Strand offered us the use of his house over Christmas while he and his family were visiting relatives in the United States. We were overwhelmed by his generosity.

The plane reservations took about a week to arrange. During this period, I began looking at everyday things differently. Faces on crowded sidewalks that I had given no thought to before, suddenly became wolf-like with golden eyes that were staring directly at me. Images began to ooze off advertising billboards like a Salvador Dali painting and the bright colors bled into each other. I felt I was losing my mind. My adrenaline was surging; my heart was continuously pounding. I was experiencing a primal understanding of the prolonged effect of anxiety on the nervous system.

Just before leaving for Toronto I made an appointment with the medical service at work and obtained a supply of Xanax to keep me on an even keel. I had never taken an anxiety blocker before, but I felt I needed one now because life was beginning to take on a grotesque quality.

This was, by far, the biggest crisis that Ian and I had encountered in our twenty years of marriage. It was the biggest crisis I had encountered in any aspect of my life. Thankfully, Ian and I had always relied on our church, both in Ottawa and Geneva. We needed it now more than ever. The problem was, I didn’t know how to pray. The idea of becoming emotionally invested in prayer was still a foreign concept to me; I just didn’t get it. Father Nicholas was accustomed to this kind of Christian and more than willing to share his expertise with me. Through a series of conversations and e-mails, he gave me a beginner’s introduction to prayer, which I found comforting.

I dug out my Good News Bible for the first time in years. I randomly opened the book and my finger fell on the verses where Jesus cures the man possessed by demons. What a coincidence. I was struck by the realization that mental illness has been for around a long time. Jesus asks the man’s name and he answers, “My name is Legion, for there are many of me.” What stirred my interest was that Jesus cured the man. This really was good news! I was elated until another thought dampened my fledgling hope: Since Jesus cured the demon possessed, why today are there so many men and women live on the edge of society, in our streets and homeless shelters? Why do we in the church speak of so often of faith, but are reluctant to believe in miracles?

Excerpt from Family Constellation chapter of my memoir

Here is the chapter from my book where I attempt to show how Family Constellation Therapy worked in the context of our family situation. This chapter was probably the most difficult chapter to write. It has been through many edits because it’s important to explain how the therapy works as clearly and succinctly as possible. I’ve taken a few liberties, not many, with what actually happened, in order to make the chapter flow more smoothly. The names of the characters are fictitious. The entire book, save for the last chapter, is available, for the time being, at the authonomy website.

CHAPTER 26 FAMILY CONSTELLATIONS

Dr. Thomas Szasz writes that there are two kinds of psychiatrists: the institutional ones, who bring the power of the state to bear on the individual through forced medications and coercion, and the contractual ones, who enter into a private, consensual contract with the patient. Ian and I had experienced the power of the institutional psychiatrist at CAMH, Belle-Idée, and the day program. We were eager to find a local, private doctor who would work with Chris in a more consensual arrangement.

It was perhaps a tall order, but I was hoping to find a psychiatrist who was willing to consult with Dr. Erika and who could do a few sessions of Family Constellation work with us. I was convinced Family Constellation Therapy was the missing link I had been seeking. I truly felt that if Chris were going to experience a breakthrough, then this therapy would make it happen. I took Dr. Klinghardt’s observations to heart, that schizophrenia was a manifestation of a magical belief system and had to be approached at the same intuitive level (four).

After pursuing numerous false leads, I learned that the head of the l’Espoir program, Dr. Rx, was the person to speak to who would probably know about Family Constellation Therapy. Dr. Rx? Had Dr. Rx been withholding information about the therapy from us the entire time Chris had been in the day program? What had we been doing for those twenty-two months in his program—paddling around in the shallow end of the pool for young people with psychosis? Or was Family Constellation Therapy, in his view, only reserved for old people with psychosis? The end result of my convoluted journey was humorously ironic. I had no intention of contacting Dr. Rx.

It was our old contact, Dr. Robert, who referred us to Dr. Maria Stern, a tri-lingual psychiatrist and Family Constellation therapist practicing in Geneva. I telephoned Dr. Stern and explained why I thought Family Constellation Therapy might help Chris. Dr. Stern listened very carefully to what I had to say and suggested that we schedule an initial appointment for the end of June.

On the morning of the appointment, Ian, Chris and I drove to Dr. Stern’s office, which was located on the first floor of a small residential building near the Hôpital Cantonal de Genève. We circled her street several times before we managed to find a parking spot. We rang her office door bell promptly at 8 a.m. and waited. We rang again. After what seemed like hours, not seconds, Dr. Stern unlocked the door and ushered us in. “Please come and sit down,” she said, steering us towards a loveseat and two chairs grouped around a small glass table in one corner of the room. From my vantage point on the loveseat, I looked out at the rest of the room, which was enormous and devoid of furnishings save for three large Oriental carpets on top of the parquet floor.

While Ian and Dr. Stern talked about where in future to find parking space closer to the office, I sized up Dr. Stern, who I guessed to be in her late forties. Excellent English, slight German accent. She wore no jewelry or make-up and was conservatively dressed in a pearl gray jacket and skirt and light-blue blouse. She seemed like a sincere person. I hoped she would also prove to be a good psychiatrist for Chris.

Dr. Stern wanted to make sure that not just Ian and me, but Chris, too, was willing to participate in the therapy and after more small talk with all of us, she spent several minutes focused on Chris, trying to get him to talk a little about himself. She often had to ask him to repeat what he’d said because he spoke so softly.

When Dr. Stern finished speaking with Chris, I surprised her by handing her a Family Constellation version of our family tree, starting with Chris and his brothers and working back four generations on both sides of the family, up to and including Ian’s and my grandparents. I’d included short descriptions of each ancestor, detailing what appeared to be the central disappointment or tragedy of their lives.

“My clients aren’t usually so well-prepared,” she said with a smile, promising to familiarize herself with our family history before our next appointment.

“Normally,” she explained, “I conduct my Family Constellation therapy in French on the weekends with several families at once. The participants act as stand-ins for the ancestors of other families present, and I introduce them to their roles and observe the interactions when they are in their roles. Since French is not your family’s first language, I’ll schedule an appointment during the week with just your family. Instead of having each of you play different roles within a family grouping, I’ll ask either you or Ian to place paper outlines of shoes on the floor to represent your particular group of ancestors.”

Ian and I stared at her. Shoes?

“Wait here,” said Dr. Stern, getting up and disappearing through a door into her inner office. She soon reappeared with a file folder and held up a piece of A4 paper labeled “CHILD” with the outlines of two tiny shoes that represented a young child.

“I’d best show you what I mean,” she said, walking to the center of the room, whereupon she quickly began placing the file’s contents on the floor. “This constellation represents the family of a man I saw last month. The man placed the shoeprints on the floor in the way I am showing you now. He put his father’s shoeprints here, and his mother’s shoeprints here. His grandmother was very interfering and you can see from her shoeprints that she is blocking the space between her son and his wife.”

Dr. Stern paused. “That’s all I’m going to say about this constellation. I think it’s enough to show you how we use shoes in this therapy.

“Let’s say that Ian chooses to do his side of the family,” she continued. “Ian will place the shoeprints on the floor and resume his seat and then I take over as the actor.” Dr. Stern took a couple of steps backward and stood on the paper representing the grandmother of the man she saw the previous month.

“The actor absorbs and reveals the hidden connections, issues and confusions of the family energy field. Whether I am acting or facilitating, I may sometimes interject to ask questions of myself or the actor about the spatial orientation and distancing of where the shoes are placed; when I am acting, I may simply move my body in a way that shows how I feel impacted by the energy of the other members of the ancestor family. “Eventually, we come to a resolution. I ask the person whose family constellation was acted out to take over from me and position the family members in their rightful places in the constellation. Having placed ourselves in the drama by observing or by acting, we can sense how and where the injustices or exclusions have occurred, and the family member symbolically changes the pattern of the family dynamics by physically moving the shoeprints into a more harmonious grouping. Healing can now happen because the energy of the constellation begins to flow naturally.”

Ian and I looked at each other and nodded. What Dr. Stern explained to us made sense. I pushed up my sleeve to check my watch. Two and a half hours had elapsed and it was time to go. Before we left her office, we booked two appointments for the whole family in the first week of July as Dr. Stern would be leaving for summer vacation almost immediately after.

On the morning of the first appointment, our family gathered in Dr. Stern’s therapy room at 8 o’clock. Ian and I deliberately shared only basic information in advance with Alex and Taylor about what the therapy entailed. I had insisted that they read the short descriptions of our family tree that I had given to Dr. Stern. I knew that they were not especially curious about their ancestors and were unhappy about the turmoil our family had gone through over Chris. They attended the appointment under duress.

“I’m quite busy and I don’t think I can make it to all the sessions,” Alex announced to Dr. Stern, in a tone of voice that implied, “Don’t bother trying to convince me otherwise.” Alex was friendly with Dr. Stern, even though he had already made up his mind that he wasn’t planning to stick around for future sessions, but Taylor was aloof and remained so throughout the session. Chris, as usual, was quiet. He spoke only when spoken to.

Chris was more knowledgeable about his ancestors than his brothers were because he had helped me construct our family tree over the course of the previous year. Finding the birth dates and deaths of our ancestors through family records and Internet searches and entering the information into a database gave him and me a new pastime and a chance to talk about what our ancestors’ lives may have been like.

Dr. Stern issued us a short set of instructions. “Decide which set of ancestors you would like the Constellation to be about. If it’s the maternal side then Rossa will put the shoes on the floor; if it’s the paternal side, then Ian will do it.”

Ian and I had agreed in advance of our meeting that Ian would start with his father’s side of the family. Ian’s parents went through an acrimonious divorce when Ian was a teenager and he is not close to either parent. He has a tense relationship with both his father and his mother. Ian feels that his father, Bill, has never acknowledged his part in the family breakup and should have apologized to his children for the misery they suffered.

Ian is named after his paternal grandfather. Ian John Forbes left Aberdeen, Scotland at the age of seventeen and arrived in Toronto just before the First World War broke. He joined a local regiment, whereupon he was shipped first to England then to France. His military records indicate that he was in hospital most of the time he was in France, suffering from pyrexia of unknown origin (PUO) or what was commonly called trench fever. A patient usually recovered from trench fever in less than a month, but in rare cases, the continuing after-effects of the fever included fatigue, anxiety, headache, neuralgia and depressed mood.

We knew very little about Ian’s grandfather other than that he spent the rest of his life after returning to Toronto as a semi-invalid, and an alcoholic as the years went by. His children were all born several years after the war ended. Ian John’s wife, Emma, was an English nurse, so there is a good possibility that she met her husband when he was a patient in her hospital. Bill (full name David William), rarely offers much information about his parents, even when we ask about them. Ian John’s children and grandchildren were always under the impression that his health troubles stemmed from being gassed during the war, but his military records revealed no further information.

Dr. Stern told Ian to be spontaneous in placing the shoe outlines on the floor. “The placement should be intuitive, not logical,” she explained. “Don’t think about it too much.”

Ian placed six pairs of shoes, for his grandparents, and their four children: Bill, and Bill’s twin sister, Bill’s older sister, and a firstborn child with the same first and middle name as Bill’s. “David William” died of leukemia at the age of three, before the rest of the siblings were born.

After Ian finished laying out the shoes, he sat down beside me on the loveseat. We waited nervously to see what would happen next.

Dr. Stern then began a mesmerizing narrative dance, stepping first into the shoes of Ian’s grandfather. She stood quietly, with her head bowed, her eyes looking down at, but not focused on, her shoes, and her arms hung limply by her side, as if she were a marionette loosely dangling from an invisible string. Her breathing caused her shoulders to rise ever so slightly and her stomach to expand and contract.

“Hmmph,” said Dr. Stern, inhaling a sharp intake of air through her nostrils while still keeping her head bowed. Her marionette shoulders shivered ever so slightly. There was complete silence in the room; all eyes were focused on Dr. Stern. After what seemed an eternity, she shook herself a little and began to speak. “I can see I have three lovely children,” the grandfather continued, but I am not close to them. I have a fine wife, but I can only see part of her from where I am standing. Where is my first born son, David William?” With her feet planted firmly, Dr. Stern rotated her body, her feet not moving, to gaze over her left shoulder.

“Oh, I see; there he is,” spoke the grandfather, in the voice of Dr. Stern. “He died young, didn’t he? I thought I had forgotten him. But you didn’t, did you, my dear,” he said softly to Emma. “You are standing by him.”

Ian and I had grabbed a couple of tissues from a large dispenser on the glass table and began wiping our eyes. As the drama progressed further, we wept more openly. We were heartbroken about how the grandfather’s ill health, death of his first born child, and personal demons had estranged him from Emma, Bill and his two daughters.

Dr. Stern wept, too. There were at least four dry eyes in the room. Taylor and Alex looked bored, occasionally exchanging suppressed smiles.

Every so often, Dr. Stern would glance sideways at Chris, to see how he was following the unfolding drama and to watch his reactions. Chris was too far into his protective shell to cry, but he was riveted by the drama. His eyes never strayed from Dr. Stern. He seemed to understand the dynamics of the constellation, and sense the burden carried by its family members.

Dr. Stern was finally finished with her acting role. “Ian,” she said, “let’s trade places. Now it’s your turn to stand in the shoes of each family member and to express any emotions or wishes you may have about where you would now like to place the shoes.” When Ian stood in his father’s shoes he realized he couldn’t see David William, his older brother, from where he was standing. Ian suggested that he should be included in the same line as the other three children. So, Ian moved David William, the almost forgotten child, next to his younger brother and namesake, Bill. Then Ian, standing in his grandfather’s shoes, expressed that he would like to feel closer to his wife, so he moved Emma’s shoes close to Ian John’s.

“How do you feel about the family?” Dr. Stern asked Ian, then each of us in turn.

Ian felt immensely sad, so did I, so did Chris. Taylor and Alex, still resistant to being involved in the therapy, mechanically stated that they felt a bit sad, too. I’m sure that what they said was true; it was hard not be affected by the energy in the room.

After three hours, we were all totally tired and grateful to leave.

“Now, just remember,” said Dr. Stern. “Don’t analyze what you have seen and done today and try not to speak to each other or to other people about it. Whatever comes out of these sessions will happen at an emotional level and will take time.”

Two days later we were back in Dr. Stern’s office, save for Alex who had suddenly discovered commitments he could not possibly break. All the pleading in the world got us nowhere.

“Alex is tough like that,” I remarked to Dr. Stern.

“Being tough is probably a good way to be,” she replied.

In reviewing the outcomes of the previous session with Dr. Stern, Ian and I agreed that we felt saddened but closer to Ian’s family on his father’s side. Chris, ever so slightly nodded his head in agreement.

This time, it was my turn. I chose my mother’s side of the family because of the impact that the early death of my grandmother had on my mother. My father lost his father when he was eight, so I could have started with his side of the family, but I knew that losing her mother when she was only four years old had a huge effect on my mother, Lily.

I remember meeting my grandfather, Kurt, on two occasions only—once when I was about three years old, and once when I was a teenager. Lily didn’t like Kurt, and so our family rarely saw him. Towards the end of her life, my mother told me that she’d felt her father blamed her for her mother’s death. My grandmother, Anna, died of scarlet fever, which she’d caught from Lily in 1924. While I was growing up what I heard from my mother was not that her father blamed her directly for her mother’s death, but that he penalized her by forcing her to quit high school, despite the fact that she was at the top of her class, and refused to buy her new clothes. In her teen years she also had to cope with his third wife, whom he divorced, and his marriage to his fourth wife, who was only slightly older than my mother.

I quickly laid out the shoe patterns for my grandparents, Anna and Kurt, my mother, Lily, and her older brother. I also included in the Constellation grandfather Kurt’s first wife, who was his second cousin. She died while still a teenager, leaving him a widower for the first time. Family Constellation therapists would say that her death enabled my grandmother to marry my grandfather, and that’s why she should be included in the family grouping.

The pattern was rather conventional ―grandmother and grandfather on the same linear path, shoes facing their children, but not spaced close together, children placed below and parallel to the parents, facing them, and the first wife behind my grandfather but far away.

Dr. Stern took her position as interpreter of personal dramas. She started by stepping into my mother’s shoes, and in a plaintive voice asked, “Where is my mother?” As Lily continued to speak, I acknowledged to myself that, as a child, I had never given much thought to the impact my grandmother’s death had on four-year-old Lily. To my way of thinking, she died — that was all — and I accepted her early death as just one of those things that so often happened to people of my parents’ generation. I knew it was a defining event for my mother, but I didn’t dwell on it when I was growing up. Today, in this room, the effect of my grandmother’s death would starkly reveal the impact on her immediate family. I sensed I was about to find out some disturbing truth that I had chosen to ignore until now. I felt cold, despite the warm summer air wafting in through the open window.

Next, Dr. Stern took the place of my grandfather. She hung her head and dropped her shoulders in the marionette position, and for a few minutes, she said nothing; then, slowly, horror seemed to pervade her body. She put her hands over her cheeks and shook her head in dismay while rocking slightly back and forth. She said nothing. She didn’t need to say anything. Our knowing about the death of his first wife and the death of his second wife who left him with two young children didn’t need an explanation.

As I watched Dr. Stern alternate between my grandfather, grandmother and his two wives, I thought despairingly about my mother. My mother was a kind and giving person, but she lived most of her life with three daughters who wouldn’t touch her unless they absolutely had to do it. I now began to wonder if there was more to our lack of physical affection than just the societal norms of the era when I was growing up. I remembered how my sisters and I also hated to play with dolls. I thought of an old black and white photograph of my sisters and me on Christmas Day, looking sullen, our faces dark as thunderclouds. My parents had bought us all kinds of dolls as Christmas presents ―Tiny Tears baby dolls and glamorous fashion dolls with frothy tulle skirts. These gifts would have thrilled lots of other girls, but not us. Not one of us at that age wanted to nurture. Of the three sisters, I am the only one of us today who has children. My sisters chose to remain childless.

Dr. Stern paused in her role playing. “I sense a chill in the room. It feels like death.” She pulled her light, cotton cardigan a little closer to her body. I reached for a tissue and wiped my eyes, suddenly recalling that there was another family member who died early, and that was Anna’s mother, Clara. Clara died when Anna was only ten. When I was three years old I almost died from a blood-related disorder. Family Constellation Therapy might say that I was trying to sacrifice myself to fulfill this particular family curse.

Random thoughts popped into my head as I watched the drama unfold.

Perhaps my sisters and I feared getting too close to my mother meant we risked early death, almost as if early death is something we could “catch” from her, and that’s why we refused to show her physical affection.

Have I unconsciously withheld affection from Chris because I feared that he would die, too? Did he withhold affection from me because he, too, sensed the contagion of death?

All those sleepless nights after he was born when he cried and cried because I had no breast milk. Chris was literally starving by being denied the most nurturing food of all.

This latest revelation about Chris made me feel sick with remorse.

During this Constellation, the same as in the first one, Dr. Stern again looked at Chris to gauge his reaction. Chris was still keenly following the drama without saying much.

Dr. Stern caught something in Chris’s reaction that she thought was important.

“I think I’ve got it!” she said at the end of the session. She turned to Chris and said, “You should not have to carry this burden any longer.” Without offering any explanation, she announced that the session was over. Each of us was left to find meaning in what we had witnessed, in our own way.

For the second time, we left Dr. Stern’s office, exhausted and deeply aware of the sacrifices that had been made by those who went before us. Again, abiding by Dr. Stern’s instructions, we did not discuss what took place in the room.

Chris’s illness had already taught me not to take parenting for granted. There are hidden and not so hidden dramas going on in all families despite parents loving their children and trying to do the best for them. Some especially sensitive children may fail to blossom—even though they are loved—if they sense a hidden undercurrent of tension which they will try to correct in their own way. Family Constellation Therapy taught me that to be a parent is to accept one’s part in a sacred journey, a journey that began generations before. As parents, we profoundly influence the lives of our children and our children’s children, for better and for worse.

By participating in the Family Constellation sessions, I believed that each member of our family, not only Chris, would undergo an energy transference that would positively affect any healing that needed to occur in the present. Healing the present generation would have a positive impact on future generations of our family tree.

In the meantime, we had to wait and let the magic happen.

Bruce Levine – a better way to see psychosis

Here is an excerpt from Bruce Levine’s most recent Mad in America post. This view of psychosis is comforting to me. Psychosis has always struck me as an odd way to rebel because it actually makes people dependent on those they rebel against, and seems to retard their lives. A socially acceptable form of rebellion is to leave home at an early age, tell your parents you are sick of their interference, and get on with your own version of your life, independent of others’ financial support or judgements. And yet, we all must rebel in some way if we are to grow. So, if psychosis is rebellion, wish the person Godspeed.

Many people with severe anxiety and/or depression are also anti-authoritarians. Often a major pain of their lives that fuels their anxiety and/or depression is fear that their contempt for illegitimate authorities will cause them to be financially and socially marginalized; but they fear that compliance with such illegitimate authorities will cause them existential death.


I have also spent a great deal of time with people who had at one time in their lives had thoughts and behavior that were so bizarre that they were extremely frightening for their families and even themselves; they were diagnosed with schizophrenia and other psychoses, but have fully recovered and have been, for many years, leading productive lives. Among this population, I have not met one person whom I would not consider a major anti-authoritarian. Once recovered, they have learned to channel their anti-authoritarianism into more constructive political ends, including reforming mental health treatment.


Many anti-authoritarians who earlier in their lives were diagnosed with mental illness tell me that once they were labeled with a psychiatric diagnosis, they got caught in a dilemma. Authoritarians, by definition, demand unquestioning obedience, and so any resistance to their diagnosis and treatment created enormous anxiety for authoritarian mental health professionals; and professionals, feeling out of control, labeled them “noncompliant with treatment,” increased the severity of their diagnosis, and jacked up their medications. This was enraging for these anti-authoritarians, sometimes so much so that they reacted in ways that made them appear even more frightening to their families.

Psychic surgery

I had never heard of psychic surgery until about fourteen years ago when a middle aged man showed up at our newly built apartment building, selling inexpensive paintings from an artists’ cooperative.  We bought a few paintings from him to cover our bare walls.  This man, I’ll call him “John” had an incredible story to tell about how his cancer had been cut away from him in the Philippines by a healer using nothing but his bare hands. The healer literally pulled the diseased bits of John’s organs out of his body, leaving no scars and only a slight reddening of the skin. John told me he had also seen the healer pluck a man’s eyeball out to work on it, then pop it right back into its socket. All of this involved no surgical tools and no anesthetic.

John showed up again at our apartment last night after a hiatus of several years. My walls have all the artwork they need, but it was a chance for John and I to renew our acquaintance, and, instead of buying, I promised to spread the word to anybody I knew who might need a painting. We talked some more about the experiences he had undergone in the Philippines, since he had been back several times since for more treatment. After he left, I got curious and decided to check out this phenomenon on the web. Here’s some background information on it and a graphic Youtube presentation featuring Placido Palitayan


Chris Cole has been practicing psychic surgery since the 1970s. “My belief is that I don’t heal anybody,” says Cole. “All I do is act as a channel for the energy and that energy then helps to initiate the healing response. Your own innate healing wisdom does the healing and all I do is act as a medium for the energy. I believe that universal energy is the God essence and it’s a connection with the source of that energy that I’m tapping into.”

As with the rest of my holistic journey, I learned to suspend disbelief a long time ago. Psychic surgery seems to be the ultimate energy power of the Holy Spirit chanelled as a physical intervention.