Fare thee well

I said goodbye to Jennifer a couple of weeks ago after making two quick trips out to see her in the space of a few days. On the first trip, I brought her a pretty floral dress picked up on sale that I thought would look good on her. She was delighted and said she would wear it to church that weekend.

To put an optimistic spin on whether she will do the Focused Listening program that I have been encouraging her to do, the answer is she has NOT been doing it, and my hope is that she will turn to it in future when she’s in a state of mind that will allow her to take more control of her health. To underscore this message, I typed out a letter for her that I slipped into the dress bag. I said that the only real gift I could give her was the music program.

On my final visit, I brought along a mutual friend who is keen on checking in with Jennifer from time to time. I’ve instructed my friend in the basics of the music therapy and she’s in charge of some money donated by our Club’s Board members that is earmarked for further equipment if there is a need.

Jennifer asked us if on our way home, we could to take her back to her old flat (15 kilometres away!) so she could get in her daily 3-hour walk back to the hospital. It was a blazing hot day. She doesn’t use sunblock. I noticed that Jennifer was back to wearing flimsy slippers, not the sturdy walking shoes she’d gladly accepted from me on a previous visit for exactly that purpose. I wince when I think of her walking all that way in the heat in those shoes. I’ve dealt with the same lack of follow through or understanding of protecting one’s health and comfort with Chris.

The difference between her and Chris? Chris lives with his parents and I’m constantly in his face about wearing sunblock, wearing the right shoes, and doing some useful exercises to improve his mental health. Jennifer’s care has been entrusted to the state. I’ll never figure out why so many parents spend so much of their energy trying to get the state to parent their grown children. I can well understand the impulse, but when you see that the state is an imperfect parent, and always will be, wouldn’t it make more sense to hunker down with your relative for far longer than you would care to parent, and focus, at the very least, on protecting one’s physical health?

Fare thee well, Jennifer. I hope that in time you will figure out what you need to get to a better place.

 

 

 

 

A “bad” situation isn’t always bad

Jennifer’s situation isn’t all bad, but I can’t tell her this if I’m hoping to gain her trust. She wants me on HER side and I’m afraid she’ll shut down if I tell her what I would do if I were her. Now that I think of it, I can be a little more forthright when she complains about the Haldol. I can agree with her that it’s an outdated med and the trembling it produces is unacceptable, but I can also slip in that the newer antipsychotics are terrible for weight gain, and I’ve heard they are harder to withdraw from. I don’t want to “tell” her she’s wrong about the Haldol, because she isn’t, but, at the same time, I want to encourage her to adopt a more “radical acceptance” attitude. She’s been involuntarily committed. Her attitude in future may keep her well and out of the hospital.

Maybe if she also changed her attitude about her state appointed guardian, she’d might get some doors to open. According to Jennifer, he’s an idiot out to get her, nothing he says can be trusted. Why should she play ball with him? etc. It’s obvious to ME that he holds the get out of jail free card, but this doesn’t seem obvious to Jennifer in her present state. I believe, and I may be wrong, that, in the past, by rebuffing all attempts by the state to encourage her to take sheltered training, the guardian decided she was a lost cause. She is no longer entitled to training. That’s my understanding of the situation, anyway.

My years of experience dealing with my own son tell me that Focused Listening may be her best chance to get off the drugs for good and become rational enough to hold down a job. I’m not sure how much, if at all, she’s doing what I feel she should be doing to achieve what she tells me she wants to achieve. (I’ll accept that the last sentence is a bit of a mind bender.) The only strategy I can think of to get her to do the Focused Listening is to be on her side. It’s a complicated dance we’re doing.

How a little known listening program heals a range of “incurable” ills: Interview with Laurna Tallman

In her book Listening for the Light and in her extensive writings on the importance of music therapy for the ear and brain, Laurna Tallman has not only focused her considerable insights on the healing of dyslexic syndrome, schizophrenia, bipolarity, chronic fatigue syndrome, and substance abuse, but also on the socio-economic context where many find themselves unable to access the therapies that may truly help them. What little I had absorbed about the Tomatis therapy (the starting point of her work), even after undergoing the therapy myself and devoting a chapter of my own book to it, was unclear and confusing. I had no idea why Tomatis therapy might be key in treating my son’s schizophrenia. Laurna’s book changed that. The Tallman Paradigm is a theoretical, neurological framework for behavior that builds on and extends the work of Alfred A. Tomatis, with an important contribution from Vilayanur S. Ramachandran.

Simply put, the Tallman Paradigm maintains that altering the right ear with music has a global effect on brain function by making the left-brain dominate in cerebral integrative processes. The stapedius muscle in the right middle ear controls the amount of sound energy that reaches the left brain. If that muscle is weak or damaged, the left-brain cannot maintain its dominance over the right-brain. In people with a very weak ear muscle, the hemispheres trade “dominance” every two minutes. That condition of non-dominance, she asserts, characterizes schizophrenia, autism, and the state of normal sleep. The illnesses can be healed by using high frequency music, which Tomatis appreciated for its power, and headphones modified by blocking the left earpiece to force right-ear listening. A very important added bonus for anyone wanting to do the Tallman therapy is that anyone can do the therapy. You don’t need to travel to an expensive Tomatis center to benefit. People of any income level, no matter where they live, can heal themselves cheaply. The only equipment needed is ordinary headphones, a few CDs of Mozart violin concertos or other classical violin music, and a CD player such as a walkman or a computer. Laurna‘s website is another instance of Internet distance learning that people can apply in their own homes. She has several publications for people wanting to dig deeper into her discoveries.

Interview with Laurna Tallman, author of Listening for the Light

RF: I devote one of the chapters of my book, The Scenic Route, to the Tomatis Method therapy, which my son first underwent for a total of 60 hours in 2009. In 2009, the therapy produced interesting small changes in Chris. Not being particularly enlightened as to why he should continue the therapy once he had completed the 60 hours, I thought once was enough. What I took away from my meetings with the director of the program was that Chris would just “blossom” in some undefined way over time. When I finished my book in the late summer of 2017, Chris and I had some free time to revisit some of the therapies that (a) were covered by our insurance and (b) had a somewhat documented body of knowledge behind them, which is the case for Tomatis therapy. Both of us did the therapy this time, for 40 hours each. I felt energetically rejuvenated, but came away none-the-wiser about what this therapy can do for people or why Chris and I should stick with it.

Laurna, I suspect that my impressions of Tomatis therapy are shared by others. Tomatis therapy is expensive. Tomatis clinics usually are restricted to large population centers and the treatment is not covered by a lot of insurance plans. Can you expand on any other of its drawbacks when it comes to schizophrenia and the other conditions and why you advocate using Focused Listening?

LT: Yes, I can. But, first, I want to express my appreciation for the genius of Tomatis that led to important discoveries and my gratitude for the kindness of practitioners who use that method to reach out to people in need. Four members of our family experienced some version of the Tomatis Method and each made astonishing recoveries from dyslexic syndrome or from chronic fatigue syndrome. Those healings were not permanent, however, which set me on my own road to discovery. I would learn that treatments affecting the ear cannot be guaranteed to be permanent because the ear is easily harmed, for example, by loud noise, by infections, and by other means. Continue reading “How a little known listening program heals a range of “incurable” ills: Interview with Laurna Tallman”

Convincing people who are convinced they don’t need help

I popped in to see Jennifer last week to see how she was doing and to find out if she had started the Focused Listening program (which she hadn’t). She seemed in need an outing so we got in my car and went for a coffee at a hotel by the lake. No sign-out procedures at the hospital. I doubt anyone knew she was gone. This made me think that the staff believed that the headphones that I gave her a few weeks ago posed no suicide threat. Because of the hospital’s liberal policy of allowing patients to wander off-site I figure she has ample opportunity to kill herself and so I don’t need to go wireless for her.

Conversationally, she’s much improved. I disregarded the occasional forays into paranoia. (The bloodbath is still raging in town.) She said she’d like to work again, and that was my chance to reinforce the music therapy by saying that that my son hoped to work, too, and Focused Listening might help get them both there. Any chance I got, I put in a plug for listening to the music. She went to the washroom. I donned my headphones in her absence so when she came back she could see how much I was enjoying them.

We got back in the car and she suddenly suggested that I drive her to her old apartment so she could pick up some summer clothes and shoes. People (she didn’t say who) have been cutting holes in her shoes. She showed me where there was a hole.

When I got home after dropping her back at the hospital I wrote her a letter and posted it later that day. I wrote that the next time I came out, I’d like some reassurance that she had been doing the therapy. I would bring my headset and we could go for a walk.

A meeting with the Board

I took my proposal to help Jennifer (see previous posts) to my Board meeting last week. What I was looking for was a commitment from the members present that the Club would support her by making sure that she has what she needs to concentrate on her Focused Listening. I’ll be moving to Florida this summer and regret that I won’t be around to keep an eye on the situation.

I told the Board that I don’t know at this point whether Jennifer will want to devote two hours a day to the listening. To find that out I’ll make a couple of more visits to the hospital to see how it’s going.

Interestingly, three people on the Board have professional experience dealing with psychiatric patients: A social worker, a psychologist, and a pharmacist. The social worker was entirely in agreement with taking on the “Jennifer project” and wants to be part of the long run plan. The pharmacist had just written her boards the day before on psychiatric drugs and raised lots of ethical and liability concerns about the dispensing of care. The psychologist raised a further concern that the Focused Listening music therapy was not peer reviewed science.

What I take away from this is that professionals will always tell you why something can’t be done. Deviations from the norm can be construed as dangerous and untested.This seems especially true in psychiatric situations. The psychologist and the pharmacist no doubt felt duty bound  to raise the issues, and the Board was probably prudent in wanting to limit its liability, but the reaction is an example of why I think it’s a good idea to limit one’s exposure to the medical model. Progress will be slow or non-existant if health care is left to the professionals. If there Board might have been inclined beforehand to make it official, they weren’t about to after hearing from the professionals.

The President proposed that the Club informally help Jennifer, and she encouraged any  member to informally contribute keeping Jennifer supplied with visitors and focused Listening equipment. Afterwards, two Board member approached me and offered money to keep the project afloat.

All in all, a wonderful outcome to the meeting.

 

 

 

 

Listening for the Light: A New Perspective on Integration Disorder in Dyslexic Syndrome, Schizophrenia, Bipolarity, Chronic Fatigue Syndrome, and Substance Abuse

Book review of Listening for the Light: A New Perspective on Integration Disorder  in Dyslexic Syndrome, Schizophrenia, Bipolarity, Chronic Fatigue Syndrome, and Substance Abuse, by Laurna Tallman

Listening for the Light author Laurna Tallman channels her considerable insights gained from understanding the tasks of the left and right hemispheres of the brain into practical advice for regaining optimal physical and mental health.

In normal brain function, both cerebral hemispheres process information, such as language. Both sides work together to maintain physical coordination and take in complex information. The left hemisphere has more control in the processing of tasks such as language and logic, while the right hemisphere has more control in processing tasks related to creativity and intuition. In cases of schizophrenia (and other mental illnesses to varying degrees), language and logic are severely interrupted (deficient) while creativity and intuition are wildly chaotic (hampered by the left hemisphere deficits). This book delves into the question of what causes the left hemisphere to lose its dominance, or, to put it another way, what causes people with mental disorders to become disorganized in the skills most needed to manage daily life (language and logic)?

The brain and the entire body are powered by sound energy entering both ears. The “normal” function of the stapedius muscle of the right ear is to quickly and directly energize the “logical” left brain with sound energy. The stapedius muscle of the left ear launches sound energy entering the left ear on a circuitous route before feeding the information to the larynx. Dr. Alfred Tomatis, an ENT doctor, scientist, and founder of the method named after him, knowing that right-ear sound is a more direct route to the larynx, determined that it is the right ear that controls the voice, concluding that the voice can only reproduce what the ear can hear. Tomatis was not talking about “tone” (the quality of a sound) he was talking about “pitch” (the frequency of the sound being produced, e.g., “C” instead of “D-flat”). And he was talking, first, about singers. (His father was an opera singer.) He thought in terms of “overall pitch” of the speaking voice in various languages. He paid no attention to what caused nuanced tone in the speaking voice. (e.g. there is little nuance in “flat” affect, a negative symptom of  schizophrenia.) He had no idea what caused garbled speech, although he knew the right ear needed to be dominant to stop stuttering and to help dyslexics. And herein lies Tallman’s neurological paradigm: His ideas of ear dominance did not extend to cerebral dominance. Tallman is the one who saw that connection: that altering the right ear was having a global effect on brain function by making the left-brain dominate in integrative processes. Tomatis just thought each half of the brain ran at a different speed. Integration wasn’t on his radar. 

Tallman asserts that most mental illness begins in the ear, and, specifically with a weakened stapedius muscle in the right middle ear. When the right ear stapedius muscle is either naturally weak or weakened by drugs, exposure to loud noises, etc., corrective stimulation needs to be applied. More energy needs to flow through the right ear to enable the left brain to assume its dominance in language and logic. Focused Listening strengthens the right ear to increase that sound energy flow. She makes an excellent case for why this is so.  When I came across Tallman’s book, having had some experience with the Tomatis Method, suddenly I had an comprehensive, coherent, and plausible explanation for the origin of my son’s symptoms and a clear idea , thanks to this book, on how to improve on the Tomatis Method‘s shortcomings. Continue reading “Listening for the Light: A New Perspective on Integration Disorder in Dyslexic Syndrome, Schizophrenia, Bipolarity, Chronic Fatigue Syndrome, and Substance Abuse”

“Jennifer” Part II: It takes a village

In my last post I wrote about Jennifer landing back in the hospital after two years of progressively deteriorating behavior. I won’t be able to visit her until later this month after my vacation. Probably just as well, as by then, she may be be better able to receive visitors.

I’d like to set her up with Laurna Tallman’s focused listening by giving her a good set of headphones, an MP3 player onto which high frequency violin music has been downloaded, some mandala colouring books for adults, and a set of simple instructions.

Assuming Jennifer agrees to my offer, it’s unlikely that she’ll be able to manage and safeguard the equipment over time and replace it when needed. Who will support her listening efforts through personal contact? (I’m in the process of moving far away and won’t be around after June to help her.) Here’s where I’m hoping to involve the members of a club that I belong to where Jennifer used to be a member. I’ll be asking the Board in May if the Club will take her on as one of their many charitable projects, to replace the equipment when needed, to make sure she’s got a reliable source of high frequency music, and to encourage her to keep listening.

How to cure schizophrenia

Pay special attention to today’s important post. Laurna Tallman has given me permission to reprint her original blog post (see below) in its entirety.

I discovered Laurna Tallman’s astonishing research during this past summer when I was lining up further Tomatis therapy for Chris and beginning therapy for me. I read her blog post and was impressed, but didn’t return to it until Chris and I had finished forty hours of standard Tomatis therapy spread over two sessions, one in September and the second one in November. The Tomatis director was very encouraging about Chris’s growing listening comprehension. On my part, I felt after only a few hours of the therapy that my vision has somehow expanded to take in things in my environment that I hadn’t seen before. For example, how come I hadn’t noticed how wide these streets are? Along with this came a burst in me of newfound enthusiasm for living. But, I was none-the-wiser about why this therapy might be well suited for schizophrenia, let alone “cure” schizophrenia. Doctor Alfred Tomatis didn’t have much to say about schizophrenia in his published work. You have to really dig deep to find out about alternative healing for schizophrenia buthey, that’s why I write my blog.

I re-read Laurna’s post a few weeks ago, did a bit of internet snooping around on her other postings, and my first reaction was: How can she be so absolutely convinced that just about all mental illness begins in the ear? (She tends to use italics a lot for emphasis.) My second reaction was: If someone is that convinced then I’d better listen. I’m so glad I did. Her research has put forth a coherent explanation of many of Chris’s puzzling symptoms, allowing me a eureka moment. I suddenly had a plausible, elegantly tied-together explanation for what was going on with him. Finally, I had found someone who’s certain about the causes of a condition that has everyone else throwing up their hands and saying “we don’t really know”.

I’m a believer in Laurna Tallman’s work and increasingly confident that Chris will shed all traces of the symptoms of schizophrenia that have plagued him for years. Using her academic background and herself and her family as the subject of her research, through her “focused listening” technique she has gone beyond the work of Tomatis and Bérard to help people with a diagnosis of schizophrenia become more left-brain dominant (i.e., rational, logical, energized, integrated, and organized). It’s all about strengthening a tiny muscle of the middle ear.

Laura Tallman’s post from the schizophrenia tab of MentalHealththroughMusic.ca

Check out more information at the CBT tab of MentalHealththroughMusic.ca

Schizophrenia

The idea that medical science really did not know any more than I did about what caused schizophrenia was a long, long dawn.

Daniel had been in a provincial psychiatric hospital and then had been moved back to the admitting general hospital. At last, the elderly psychiatrist I had been trying for weeks to contact for information about Daniel’s mental condition telephoned me. “I am Dr. R. You can pick Daniel up today,” she said.

“What is Daniel’s diagnosis?” I asked.

“Acute schizophrenia,” she answered.

“And what is his prognosis?” I ventured.

“Once a schizophrenic, always a schizophrenic,” she replied and hung up the phone.

It occurred to me that no doctor in her right mind would break that kind of news to a parent that way. But I already had reasons for distrusting the kind of “help” Daniel was getting from his psychiatrists.

I made the hour’s drive to the hospital, picked up our oddly subdued son, and asked him as we started home if he would be able to wait in the car for a few minutes while I stopped at the library. In terror as to what sort of things might go wrong if I left him unattended, I ran into the building, found the small section on health, and gathered psychiatric texts, stories by or about schizophrenics, and books about dyslexia into my carryall. My formal education on the state of the art of psychiatric knowledge about schizophrenia had begun.

The texts I read implied that differing forms of mental illness were like different kinds of skin diseases: different, but all happening in the same place — the brain. The more I learned about neurologists’ and psychiatrists’ probing of the brain for the cause of schizophrenia, the more I fell into the trap of thinking the brain became sick in a dozen different ways to produce various mental illnesses. Occasionally, I would encounter a doctor who mentioned similarities between one mental illness or another. In fact, manic depression and schizophrenia have many similar symptoms. Autism used to be called “infantile schizophrenia.” Asperger’s is like schizophrenia in some ways, too. But no one had a theory of how or why these conditions were related.

During several of Daniel’s episodes of schizophrenia I had noticed his ability to focus on conversation wavered and returned. I measured that fluctuation. The intervals were 2 minutes of clarity followed by 2 minutes of confusion to make a 4-minute cycle. The cycle persisted all day, every day. I measured that cycle twice again, years apart, during separate schizophrenic episodes and the results were identical. I knew that some physiological process was driving the changes in his brain. But what?  Between his severe episodes we struggled to help him to defeat his addictions. Sometimes he seemed to improve a little, then, he became acutely schizophrenic time and time again. One victory was titrating his medication to the lowest possible dosage for tolerable behaviour: 0.0625 mg. of risperidone, a minuscule amount. Continue reading “How to cure schizophrenia”